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	<title>The Arc of Illinois</title>
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		<title>Arc Capitol Insider</title>
		<link>http://www.thearcofil.org/arc-capitol-insider-32</link>
		<comments>http://www.thearcofil.org/arc-capitol-insider-32#comments</comments>
		<pubDate>Wed, 16 May 2012 13:34:48 +0000</pubDate>
		<dc:creator>Tony Paulauski</dc:creator>
				<category><![CDATA[Capitol Insider]]></category>
		<category><![CDATA[Issues of the Day]]></category>
		<category><![CDATA[Arc Capitol Insider]]></category>

		<guid isPermaLink="false">http://www.thearcofil.org/?p=1979</guid>
		<description><![CDATA[&#160; &#160; &#160; I am headed for Springfield for the next few days. There is still much to do regarding restoration of the respite care, dental clinics, the UIC Family clinic grants and more. Tomorrow morning we will host a legislative coffee to discuss rebalancing and the budget in the Stratton Building Cafeteria from 8:30 to...]]></description>
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<div style="color: #505050; font-family: Arial; font-size: 14px; line-height: 150%; text-align: left;">I am headed for Springfield for the next few days. There is still much to do regarding restoration of the respite care, dental clinics, the UIC Family clinic grants and more. Tomorrow morning we will host a legislative coffee to discuss rebalancing and the budget in the Stratton Building Cafeteria from 8:30 to 10:30. Featured guests will be Joe Bishop, John Porter, Jr. and Katherine Hamann. They have great success stories to share about moving out of state institutions and are in our video &#8220;Going Home: A Full Life in the Community.&#8221; It also looks like this could the the week that the state budget is finalized.&nbsp;</p>
<p><span style="color: #ff0000;"><span style="font-size: 14px;"><strong>Tony</strong></span></span></p>
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<td><img id="_x0000_i1025" style="line-height: 100%; text-transform: capitalize; outline-style: none; outline-color: invert; outline-width: medium; display: inline; margin-bottom: 10px; font-size: 14px; font-weight: bold; text-decoration: none;" src="http://ffs.capwiz.com/thearc/images/capitol_insider_building.jpg" alt="Capitol Insider" width="604" height="143" /></td>
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<td><em>for the Week of May 14, 2012</em>&nbsp;</td>
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<td><a style="color: #336699; font-weight: normal; text-decoration: underline;" href="http://capwiz.com/thearc/mlm/signup/"><img id="_x0000_i1026" style="padding-right: 5px;" src="https://secureimages.capwiz.com/SSLProxy/view.image?host=www.thearc.org&amp;port=80&amp;path_query=%2Fview.image%3Fid%3D2581" alt="Sign Up for the Capitol Insider" width="128" height="29" border="0" /></a>    <a style="color: #336699; font-weight: normal; text-decoration: underline;" href="http://www.thearc.org/page.aspx?pid=2400"><img id="_x0000_i1027" style="padding-right: 5px;" src="https://secureimages.capwiz.com/SSLProxy/view.image?host=www.thearc.org&amp;port=80&amp;path_query=%2Fview.image%3Fid%3D2580" alt="View The Arc's Public Policy Section" width="136" height="29" border="0" /></a>   <a style="color: #336699; font-weight: normal; text-decoration: underline;" href="http://capwiz.com/thearc/issues/bills/"><img id="_x0000_i1028" style="padding-right: 5px;" src="https://secureimages.capwiz.com/SSLProxy/view.image?host=www.thearc.org&amp;port=80&amp;path_query=%2Fview.image%3Fid%3D2579" alt="View Current Disability-Related Bills" width="140" height="28" border="0" /></a></p>
<div style="clear: both; color: #505050; font-family: Arial; font-size: 14px; line-height: 150%; text-align: left;"> <br />
<strong><span>Action Alert</span></strong></div>
<p><a style="color: #336699; font-weight: normal; text-decoration: underline;" href="http://capwiz.com/thearc/issues/alert/?alertid=61298026"><span>Action Alert: Preserve Vital Programs to Help Social Security Beneficiaries Work</span></a><br />
<strong></strong></p>
<p><strong><span>Major Events Last Week</span></strong><br />
 <br />
<strong><span><span><span>Budget – House passes budget reconciliation that targets Medicaid and other low income programs</span></span></span></strong></p>
<p><span><span>On May 10, by a vote of <a style="color: #336699; font-weight: normal; text-decoration: underline;" href="http://clerk.house.gov/evs/2012/roll247.xml"><span>218 to 199</span></a></span>, the House passed a bill to stop most of the $109 billion in across-the-board spending cuts for FY 2013 scheduled to take effect in January under the Budget Control Act (BCA). It would do so by further reducing the cap on discretionary programs and by cutting mandatory programs. It would lower the cap for non defense discretionary programs by $19 billion, on top of the 6% reduction already required by the BCA in 2013. Mandatory programs would be cut by $310 billion over a decade through a “budget reconciliation” process, disproportionately targeted to programs for low income populations. These cuts include the following that would adversely affect people with disabilities:</span></p>
<ul>
<li><span><span>Medicaid reductions of $28 billion over 10 years. This would occur through changes in provider taxes, hospital payments, maintenance of effort (MOE) requirements, and payments to territories. People with disabilities would likely face decreased Medicaid eligibility and benefits as the states adjust to the reduced federal participation. </span></span></li>
<li><span><span>Repeal of the <a style="color: #336699; font-weight: normal; text-decoration: underline;" href="http://www.acf.hhs.gov/programs/ocs/ssbg/"><span>Social Services Block Grant (SSBG)</span></a></span>. The $1.7 billion SSBG enables each state to provide social services that include special services to persons with disabilities. One of the SSBG’s five goals is preventing or reducing inappropriate institutional care by providing for home and community-based services. </span></li>
<li><span><span>Cuts to the Supplemental Nutrition Assistance Program (SNAP) (formerly known as food stamps). Monthly assistance for 44 million people would be cut by $35 billion and 2 million people will lose SNAP benefits entirely.</span></span></li>
<li><span><span>Increase repayment charges for people who receive <a style="color: #336699; font-weight: normal; text-decoration: underline;" href="http://www.thearc.org/page.aspx?pid=2973"><span>health insurance subsidies</span></a></span>.  An estimated 350,000 people would likely forgo coverage, making it more difficult for the health reform law’s insurance exchanges to function effectively.  People with low incomes who received the subsidies would be affected if their incomes increase later in the year because they found a job, received a promotion, got married, or for another such reason.</span></li>
<li><span><span>Elimination of the <a style="color: #336699; font-weight: normal; text-decoration: underline;" href="http://www.hhs.gov/open/recordsandreports/prevention/index.html"><span>Prevention and Public Health Fund</span></a></span>. The Affordable Care Act (ACA) established this fund to expand investments in prevention and public health, to improve health outcomes, and to enhance health care quality. </span></li>
<li><span><span>Revisions to the medical liability system by capping non-economic damages to $250,000, limiting attorneys’ fees and other changes. </span></span></li>
</ul>
<p><span><span><span><span>However, the reconciliation process is not likely to proceed beyond the House of Representatives. A budget resolution, with reconciliation instructions, is unlikely to pass the Senate. However, the existence of a concrete plan to replace the unpopular automatic cuts could give House leaders leverage in discussions that will likely occur later this year, about how to stop the automatic cuts.</span></span></span></span><br />
 <br />
<span><strong><span>Medicaid – Implementation of key aspects of the Affordable Care Act</span></strong></span></p>
<p><span><span><span>The Arc joined with the Consortium for Citizens with Disabilities (CCD) to submit comments on two regulations implementing key aspects of the Affordable Care Act (ACA). The regulations pertain to how states are to establish the private health insurance markets known as the health insurance exchanges for individuals and small businesses, in addition to implementing changes in Medicaid eligibility required by the ACA. The CCD comments focused on recommendations for strengthening coordination between Medicaid and the exchanges.  The comments are posted on <a style="color: #336699; font-weight: normal; text-decoration: underline;" href="http://www.c-c-d.org/task_forces/health/tf-health.htm"><span>the CCD website</span></a></span></span><span>.</span></span><br />
 <br />
<span><strong><span>Major Events Ahead</span></strong></span></p>
<p><span><strong><span>Social Security – Senate to Hold Oversight Hearing</span></strong></span></p>
<p><span><span>On Thursday, the Senate Finance Committee will hold a hearing titled “The Social Security Administration: Is it Meeting its Responsibilities to Save Taxpayer Dollars and Serve the Public?” Visit the Committee <a style="color: #336699; font-weight: normal; text-decoration: underline;" href="http://www.finance.senate.gov/hearings/hearing/?id=35b30665-5056-a032-52b7-89db5b56d235"><span>web site</span></a></span> to review the hearing announcement and for testimony and video the day of the hearing.</span><br />
 <br />
<span><strong><span>Announcements  </span></strong></span></p>
<p><span><strong><span>Employment / Discrimination Complaints</span></strong></span></p>
<p><span><span>The U.S. Equal Employment Opportunity Commission (EEOC) has private sector workplace discrimination complaint statistics (called “charge receipts” by EEOC) for each of the nation’s 50 states and U.S. Territories for Fiscal Years 2009-2011 available on its website.  These data provide a look at EEOC charge receipts, broken down by the basis of discrimination, as well as the percent of total state and national charges. The state data tables are available online at <a style="color: #336699; font-weight: normal; text-decoration: underline;" href="http://www1.eeoc.gov/eeoc/statistics/enforcement/charges_by_state.cfm"><span>the EEOC website</span></a></span>.</span><br />
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<p><img style="border: none; font-size: 14px; font-weight: bold; height: auto; line-height: 100%; outline: none; text-decoration: none; text-transform: capitalize; display: inline; margin-bottom: 10px;" src="http://gallery.mailchimp.com/bcec73d19574f43e0b9ab00c1/images/TonySignature.jpg" alt="" width="200" height="65" border="0" /><br />
Tony Paulauski<br />
<span style="color: #ff8c00;"><span>Executive Director<br />
The Arc of Illinois<br />
20901 S. LaGrange Rd. Suite 209<br />
Frankfort, IL 60423<br />
815-464-1832 (OFFICE)<br />
708-828-0188 (CELL)<br />
Tony@thearcofil.org</span></span></p>
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		<title>The Ligas Consent Decree &#8211; What You Need To Know</title>
		<link>http://www.thearcofil.org/arc-and-the-ligas-consent-decree-what-you-need-to-know</link>
		<comments>http://www.thearcofil.org/arc-and-the-ligas-consent-decree-what-you-need-to-know#comments</comments>
		<pubDate>Tue, 15 May 2012 13:18:09 +0000</pubDate>
		<dc:creator>Tony Paulauski</dc:creator>
				<category><![CDATA[Issues of the Day]]></category>
		<category><![CDATA[The Ligas Consent Decree - What You Need To Know]]></category>

		<guid isPermaLink="false">http://www.thearcofil.org/?p=1971</guid>
		<description><![CDATA[&#160; &#160; &#160; &#160; Tony Records, Court Monitor for Ligas, did a very detailed presentation at The Arc/TAP Convention last month. Ligas and the Governor’s Rebalancing Initiative are reshaping the disability system in Illinois. I want you to have the most up-to-date information on this transition to truly assist everyone to have a full life...]]></description>
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<div style="color: #505050; font-family: Arial; font-size: 14px; line-height: 150%; text-align: left;">Tony Records, Court Monitor for Ligas, did a very detailed presentation at The Arc/TAP Convention last month. Ligas and the Governor’s Rebalancing Initiative are reshaping the disability system in Illinois. I want you to have the most up-to-date information on this transition to truly assist everyone to have a full life in the community. This is an important part of that effort.<br />
 <br />
Tony started his presentation by showing the Ligas video produced by Equip for Equality. I would highly recommend that you view that video first for background on Ligas, “A Place To Call Home:” <a style="color: #336699; font-weight: normal; text-decoration: underline;" href="http://www.roustaboutmedia.com/efe2011.html">http://www.roustaboutmedia.com/efe2011.html</a><br />
 <br />
Here is Tony’s full presentation: <a style="color: #336699; font-weight: normal; text-decoration: underline;" href="http://gallery.mailchimp.com/bcec73d19574f43e0b9ab00c1/files/Tony_Records_Keynote_Presentation_4_26_12.ppt">Ligas Consent Decree: What It Means to You</a><br />
 <br />
In addition, Tony shared with us some concerns about Ligas implementation and necessary supports to class members. They include:<br />
 </p>
<ol>
<li>True person-centered planning for class members</li>
<li>Rates for community supports/services being too low</li>
<li>Lack of medical and behavioral health supports</li>
<li>The implementation of managed care for direct services (phase three)</li>
</ol>
<p>  </p>
<p><img style="border: none; font-size: 14px; font-weight: bold; height: auto; line-height: 100%; outline: none; text-decoration: none; text-transform: capitalize; display: inline; margin-bottom: 10px;" src="http://gallery.mailchimp.com/bcec73d19574f43e0b9ab00c1/images/TonySignature.jpg" alt="" width="200" height="65" border="0" /><br />
Tony Paulauski<br />
<span style="color: #ff8c00;"><span>Executive Director<br />
The Arc of Illinois<br />
20901 S. LaGrange Rd. Suite 209<br />
Frankfort, IL 60423<br />
815-464-1832 (OFFICE)<br />
708-828-0188 (CELL)<br />
Tony@thearcofil.org</span></span></p>
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		<title>Arc Potpourri</title>
		<link>http://www.thearcofil.org/arc-potpourri-2</link>
		<comments>http://www.thearcofil.org/arc-potpourri-2#comments</comments>
		<pubDate>Mon, 14 May 2012 12:16:22 +0000</pubDate>
		<dc:creator>Tony Paulauski</dc:creator>
				<category><![CDATA[Issues of the Day]]></category>
		<category><![CDATA[Arc Potpourri]]></category>

		<guid isPermaLink="false">http://www.thearcofil.org/?p=1964</guid>
		<description><![CDATA[&#160; &#160; &#160; &#160; Here is a potpourri of some great thought provoking items that have been shared with me recently and I thought you would also find them very worthwhile.   Tony   Governor Quinn interviewed by TV Anchor Rob Johnson. Rob is also a sibling and this interview gets into the Governor’s thoughts...]]></description>
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<div style="color: #505050; font-family: Arial; font-size: 14px; line-height: 150%; text-align: left;">Here is a potpourri of some great thought provoking items that have been shared with me recently and I thought you would also find them very worthwhile.<br />
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<div style="color: #505050; font-family: Arial; font-size: 14px; line-height: 150%; text-align: left;">
Tony</div>
<div style="color: #505050; font-family: Arial; font-size: 14px; line-height: 150%; text-align: left;"> </div>
<p style="color: #505050; font-family: Arial; font-size: 14px; line-height: 150%; text-align: left;">Governor Quinn interviewed by TV Anchor Rob Johnson. Rob is also a sibling and this interview gets into the Governor’s thoughts on rebalancing. Click: <a style="color: #336699; font-weight: normal; text-decoration: underline;" href="http://chicago.cbslocal.com/video/7191057-gov-quinn-discusses-programs-for-disabled-at-special-olympics/">http://chicago.cbslocal.com/video/7191057-gov-quinn-discusses-programs-for-disabled-at-special-olympics/</a><span style="display: none;"> </span></p>
<p style="color: #505050; font-family: Arial; font-size: 14px; line-height: 150%; text-align: left;">Autism and Ethics of Inclusion, autism advocate Ari Ne&#8217;eman, Barack Obama&#8217;s appointee to the National Council on DisAbility, recently spoke in Essex County, the discussion was not about autism, per se, but about civil rights.</p>
<p style="color: #505050; font-family: Arial; font-size: 14px; line-height: 150%; text-align: left;"><a style="color: #336699; font-weight: normal; text-decoration: underline;" href="http://belleville.patch.com/articles/autism-and-the-ethics-of-inclusion-a-matter-of-civil-rights-df5d91d5#photo-9805876">http://belleville.patch.com/articles/autism-and-the-ethics-of-inclusion-a-matter-of-civil-rights-df5d91d5#photo-9805876</a> </p>
<p style="color: #505050; font-family: Arial; font-size: 14px; line-height: 150%; text-align: left;">Siblings Perspectives on Special Needs, a frank discussion by Benjamin Rubin and his thoughts as a sibling: <a style="color: #336699; font-weight: normal; text-decoration: underline;" href="http://blog.specialneedsalliance.org/2012/05/sibling-perspectives-on-special-needs/">http://blog.specialneedsalliance.org/2012/05/sibling-perspectives-on-special-needs/</a> </p>
<p style="color: #505050; font-family: Arial; font-size: 14px; line-height: 150%; text-align: left;">An update on Diana Braun and a recent speaking engagement at T.F. South High School in Lansing.<a style="color: #336699; font-weight: normal; text-decoration: underline;" href="http://gallery.mailchimp.com/bcec73d19574f43e0b9ab00c1/files/I_am_Diana_Braun_Not_a_Disability.pdf"> I am Diana Braun. Not a Disability</a>.</p>
<p style="color: #505050; font-family: Arial; font-size: 14px; line-height: 150%; text-align: left;"> Share the Word to End the Word video produced by Pontiac Township High School. This is great, high school students working to end the “R” word! <br />
<a style="color: #336699; font-weight: normal; text-decoration: underline;" href="http://vimeo.com/37960890">http://vimeo.com/37960890</a> </p>
<p style="color: #505050; font-family: Arial; font-size: 14px; line-height: 150%; text-align: left;"><span style="color: #0000cd;"><span style="font-size: 18px;"><strong>The Arc appreciates our Professional Corporation Sponsor:</strong></span></span></p>
<p style="color: #505050; font-family: Arial; font-size: 14px; line-height: 150%; text-align: left;"><img style="width: 375px; height: auto; border: none; font-size: 14px; font-weight: bold; line-height: 100%; outline: none; text-decoration: none; text-transform: capitalize; display: inline; margin-bottom: 10px;" src="http://gallery.mailchimp.com/bcec73d19574f43e0b9ab00c1/images/rubinlaw_picture.JPG" alt="" width="375" height="185" align="none" /></p>
<p style="color: #505050; font-family: Arial; font-size: 14px; line-height: 150%; text-align: left;"><span style="color: #0000cd;"><span style="font-size: 18px;"><strong>The Arc Appreciates our Keynote Sponsor:</strong></span></span></p>
<p style="color: #505050; font-family: Arial; font-size: 14px; line-height: 150%; text-align: left;"><img style="width: 375px; height: auto; border: none; font-size: 14px; font-weight: bold; line-height: 100%; outline: none; text-decoration: none; text-transform: capitalize; display: inline; margin-bottom: 10px;" src="http://gallery.mailchimp.com/bcec73d19574f43e0b9ab00c1/images/IlliniCare_logo_Color_reg.jpg" alt="" width="375" height="196" align="none" /></p>
<p style="color: #505050; font-family: Arial; font-size: 14px; line-height: 150%; text-align: left;"><img style="border: none; font-size: 14px; font-weight: bold; height: auto; line-height: 100%; outline: none; text-decoration: none; text-transform: capitalize; display: inline; margin-bottom: 10px;" src="http://gallery.mailchimp.com/bcec73d19574f43e0b9ab00c1/images/TonySignature.jpg" alt="" width="200" height="65" border="0" /></p>
<div style="color: #505050; font-family: Arial; font-size: 14px; line-height: 150%; text-align: left;">Tony Paulauski<br />
Executive Director<br />
The Arc of Illinois<br />
20901 S. LaGrange Rd. Suite 209<br />
Frankfort, IL 60423<br />
815-464-1832 (OFFICE)<br />
708-828-0188 (CELL)</div>
<div style="color: #505050; font-family: Arial; font-size: 14px; line-height: 150%; text-align: left;"><a href="mailto:Tony@thearcofil.org">Tony@thearcofil.org</a></div>
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		<title>Arc Letter to SJR Editor on Rebalancing</title>
		<link>http://www.thearcofil.org/arc-letter-to-sjr-editor-on-rebalancing</link>
		<comments>http://www.thearcofil.org/arc-letter-to-sjr-editor-on-rebalancing#comments</comments>
		<pubDate>Fri, 11 May 2012 13:47:50 +0000</pubDate>
		<dc:creator>Tony Paulauski</dc:creator>
				<category><![CDATA[Issues of the Day]]></category>
		<category><![CDATA[Arc Letter to SJR Editor on Rebalancing]]></category>

		<guid isPermaLink="false">http://www.thearcofil.org/?p=1946</guid>
		<description><![CDATA[&#160;     The State Journal Register is a very influential news source for legislators and policy staff. It is great that they published this today when legislators are in the Capitol. Tony Letters: Closures are right thing to do   GateHouse News Service Posted May 10, 2012 @ 12:02 AM  Thank you for your refreshing...]]></description>
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<div style="color: #505050; font-family: Arial; font-size: 14px; line-height: 150%; text-align: left;">The State Journal Register is a very influential news source for legislators and policy staff. It is great that they published this today when legislators are in the Capitol. Tony</p>
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<h1 class="featured_headline entry-title" style="color: #202020; display: block; font-family: Arial; font-size: 34px; font-weight: bold; line-height: 100%; margin-bottom: 10px; text-align: left;">Letters: Closures are right thing to do</h1>
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<div class="m10b" style="color: #505050; font-family: Arial; font-size: 14px; line-height: 150%; text-align: left;"><a class="url org fn" style="color: #336699; font-weight: normal; text-decoration: underline;">GateHouse News Service</a></div>
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<div class="tease_timestamp published" style="color: #505050; font-family: Arial; font-size: 14px; line-height: 150%; text-align: left;" title="2012-05-10T00:02:00Z">Posted May 10, 2012 @ 12:02 AM<span style="display: none;"> </span></div>
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<p>Thank you for your refreshing and bold editorial last Thursday, “<a style="color: #336699; font-weight: normal; text-decoration: underline;" href="http://www.sj-r.com/breaking/x1942603774/Our-Opinion-Politicians-talk-cuts-but-won-t-OK-them">Politicians talk cuts, but won’t OK them</a>.”</p>
<p>Illinois is in a fiscal crisis and it’s time for our state representatives and senators to step up to the plate and do what is needed to put our state back on solid ground. I have witnessed legislators who claim they support community services, yet vote to preserve our reliance on state institutions.</p>
<p>The governor’s Rebalancing Initiative is a perfect example of how Illinois can cut costs while improving services for people with disabilities.</p>
<p>There is not a doubt that lawmakers are facing some tough decisions. Supporting the closing of state institutions and redirecting those funds to programs for community living, however, is a no-brainer. It will save the state $20 million and offer opportunity, freedom and dignity for our friends with disabilities.</p>
<p>The governor’s Rebalancing Initiative is a modest and courageous effort to move us into a person-centered system that advocates have been working on for decades. Failure to advance this rebalancing will crush the hopes of those desperately in need of services, including the 21,000 people on the state’s waiting list and young adults exiting out of special education.  </p>
<p>Here is your call to action. The legislature is scheduled to adjourn May 31, so now is the time to make yourself heard about which direction the disability system needs to move. Call your state senator and representative and demand that they support the closing of state institutions. It’s the right thing to do.</p>
<p><em>— Tony Paulauski, executive director, The Arc of Illinois<span style="display: none;"> </span></em></p>
<p><img style="border: none; font-size: 14px; font-weight: bold; height: auto; line-height: 100%; outline: none; text-decoration: none; text-transform: capitalize; display: inline; margin-bottom: 10px;" src="http://gallery.mailchimp.com/bcec73d19574f43e0b9ab00c1/images/TonySignature.jpg" alt="" width="200" height="65" border="0" /><br />
Tony Paulauski<br />
<span style="color: #ff8c00;"><span>Executive Director<br />
The Arc of Illinois<br />
20901 S. LaGrange Rd. Suite 209<br />
Frankfort, IL 60423<br />
815-464-1832 (OFFICE)<br />
708-828-0188 (CELL)<br />
Tony@thearcofil.org</span></span></p>
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		<title>Institutional Anti Closure Bill Fails in Senate</title>
		<link>http://www.thearcofil.org/arc-and-institutional-anti-closure-bill-fails-in-senate</link>
		<comments>http://www.thearcofil.org/arc-and-institutional-anti-closure-bill-fails-in-senate#comments</comments>
		<pubDate>Thu, 10 May 2012 13:44:21 +0000</pubDate>
		<dc:creator>Tony Paulauski</dc:creator>
				<category><![CDATA[Issues of the Day]]></category>
		<category><![CDATA[Institutional Anti Closure Bill Fails in Senate]]></category>

		<guid isPermaLink="false">http://www.thearcofil.org/?p=1937</guid>
		<description><![CDATA[&#160; &#160; &#160; Thank you for asking your Senators to oppose Senate Bill 3564 these past few weeks. It is one of many bills that would make it impossible to close a state institution. This bill failed to pass in the Senate this afternoon 29 &#8211; 23. The bill failed to pass by one vote....]]></description>
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<div style="color: #505050; font-family: Arial; font-size: 14px; line-height: 150%; text-align: left;">Thank you for asking your Senators to oppose Senate Bill 3564 these past few weeks. It is one of many bills that would make it impossible to close a state institution. This bill failed to pass in the Senate this afternoon 29 &#8211; 23. The bill failed to pass by one vote. You want your Senator to vote no. . Here is the link to view how your Senator voted: <a style="color: #336699; font-weight: normal; text-decoration: underline;" href="http://www.ilga.gov/legislation/votehistory/97/senate/09700SB3564_05092012_001000T.pdf">http://www.ilga.gov/legislation/votehistory/97/senate/09700SB3564_05092012_001000T.pdf</a><span style="display: none;"> </span>The alert I sent to you today HB 1157 is very much alive and will probably see a vote soon so keep up your calls to your Senator to oppose HB 1157!</p>
<p>Thanks for now but you need to be ready for action again.</p>
<p>Tony</p>
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<p class="body"><span class="headline entry-title">Ill. Senate rejects limits on closing facilities </span></p>
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<p class="ap-story-p"><span class="entry-content">SPRINGFIELD, Ill. (AP) &#8212; The Illinois Senate has rejected a proposal to limit the governor&#8217;s power to close prisons and other state facilities.</span></p>
<p class="ap-story-p"><span class="entry-content">The bill would have required legislative approval before a governor could shut down facilities. It&#8217;s a response to Gov. Pat Quinn&#8217;s plan to cut spending by closing prisons, halfway houses and mental institutions.</span></p>
<p class="ap-story-p"><span class="entry-content">Wednesday&#8217;s vote was 29-23, but it needed 30 votes to pass.</span></p>
<p class="ap-story-p"><span class="entry-content">Supporters say Quinn the Legislature should have a bigger role in decisions that can mean economic ruin for workers and communities.</span></p>
<p class="ap-story-p"><span class="entry-content">But opponents say it would be a mistake to tie the governor&#8217;s hands when the state budget is in crisis.</span></p>
<p class="ap-story-p"><span class="entry-content">&#8212;</span></p>
<p class="ap-story-p"><span class="entry-content">The bill is SB3564.</span></p>
<p class="ap-story-p"><span class="entry-content">Online: <a style="color: #336699; font-weight: normal; text-decoration: underline;" href="http://www.ilga.gov/" target="-blank">http://www.ilga.gov</a> <span style="display: none;"> </span></span></p>
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<p><img style="border: none; font-size: 14px; font-weight: bold; height: auto; line-height: 100%; outline: none; text-decoration: none; text-transform: capitalize; display: inline; margin-bottom: 10px;" src="http://gallery.mailchimp.com/bcec73d19574f43e0b9ab00c1/images/TonySignature.jpg" alt="" width="200" height="65" border="0" /><br />
Tony Paulauski<br />
<span style="color: #ff8c00;"><span>Executive Director<br />
The Arc of Illinois<br />
20901 S. LaGrange Rd. Suite 209<br />
Frankfort, IL 60423<br />
815-464-1832 (OFFICE)<br />
708-828-0188 (CELL)<br />
Tony@thearcofil.org</span></span></p>
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		<title>Arc Urgent Action Alert &#8211; Call Today</title>
		<link>http://www.thearcofil.org/arc-urgent-action-alert-call-today</link>
		<comments>http://www.thearcofil.org/arc-urgent-action-alert-call-today#comments</comments>
		<pubDate>Wed, 09 May 2012 20:37:59 +0000</pubDate>
		<dc:creator>Tony Paulauski</dc:creator>
				<category><![CDATA[Illinois Legislative Alert]]></category>
		<category><![CDATA[Issues of the Day]]></category>
		<category><![CDATA[Arc Urgent Action Alert - Call Today]]></category>

		<guid isPermaLink="false">http://www.thearcofil.org/?p=1920</guid>
		<description><![CDATA[&#160;     This is the same awful bill that would make it impossible to close any state institutions is in the Senate just a different number!   Call your Senators in Springfield and ask them to “Vote no on HB 1157, Senate Amendment # 2. Everyone deserves a full life in the community.”    If...]]></description>
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<div style="color: #505050; font-family: Arial; font-size: 14px; line-height: 150%; text-align: left;">This is the same awful bill that would make it impossible to close any state institutions is in the Senate just a different number!<br />
 <br />
Call your Senators in Springfield and ask them to “Vote no on HB 1157, Senate Amendment # 2. Everyone deserves a full life in the community.” <br />
 <br />
If you do not know your legislator or their contact information, go to this link for State Board of Elections:<br />
 <br />
<a style="color: #336699; font-weight: normal; text-decoration: underline;" href="http://thearcofil.us2.list-manage.com/track/click?u=bcec73d19574f43e0b9ab00c1&amp;id=8be542ad35&amp;e=85b6c0783e">http://www.elections.state.il.us/DistrictLocator/DistrictOfficialSearchByAddress.aspx</a><br />
 Details<br />
 <br />
OPPOSE House Bill 1157, Senate Amendment #2<br />
 <br />
HB 1157, SA # 2, requires the General Assembly to vote by joint resolution to uphold or overturn an advisory opinion issued by the Commission on Government Forecasting and Accountability (COGFA) regarding the closure of state institutions.  While providing no deadline for action by the General Assembly, the bill prohibits the Governor from taking any action to implement a recommendation to close a state institution unless and until the General Assembly upholds the closure recommendation. <img style="border: none; font-size: 14px; font-weight: bold; height: auto; line-height: 100%; outline: none; text-decoration: none; text-transform: capitalize; display: inline; margin-bottom: 10px;" src="http://gallery.mailchimp.com/bcec73d19574f43e0b9ab00c1/images/TonySignature.jpg" alt="" width="200" height="65" border="0" /><br />
Tony Paulauski<br />
<span style="color: #ff8c00;"><span>Executive Director<br />
The Arc of Illinois<br />
20901 S. LaGrange Rd. Suite 209<br />
Frankfort, IL 60423<br />
815-464-1832 (OFFICE)<br />
708-828-0188 (CELL)<br />
Tony@thearcofil.org</span></span></p>
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		<title>Everyone Can Live in the Community</title>
		<link>http://www.thearcofil.org/arc-and-everyone-can-live-in-the-community</link>
		<comments>http://www.thearcofil.org/arc-and-everyone-can-live-in-the-community#comments</comments>
		<pubDate>Wed, 09 May 2012 15:05:03 +0000</pubDate>
		<dc:creator>Tony Paulauski</dc:creator>
				<category><![CDATA[Issues of the Day]]></category>
		<category><![CDATA[Everyone Can Live in the Community]]></category>

		<guid isPermaLink="false">http://www.thearcofil.org/?p=1917</guid>
		<description><![CDATA[&#160; &#160; &#160; &#160; The good people at Sparc have had success moving individuals out of state institutions and we wanted to host and event for reporters at the Capitol about successful transitions. Our objective was to send a message that everyone can live in the community with proper supports. We were pleased that two...]]></description>
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<div style="color: #505050; font-family: Arial; font-size: 14px; line-height: 150%; text-align: left;">The good people at Sparc have had success moving individuals out of state institutions and we wanted to host and event for reporters at the Capitol about successful transitions. Our objective was to send a message that everyone can live in the community with proper supports. We were pleased that two television stations and the Associated Press came to the event. We hope to do more targeted meetings next week in the Capitol for members of the press and legislators.Join us for the event was Carlissa Puckett, Sparc; Shirley Perez, Family Support Network and Joe Bishop a former resident at Jacksonville and Lincoln Developmental Centers. Joe now lives in an apartment with a roommate!</p>
<p><img style="width: 375px; height: auto; border: none; font-size: 14px; font-weight: bold; line-height: 100%; outline: none; text-decoration: none; text-transform: capitalize; display: inline; margin-bottom: 10px;" src="http://gallery.mailchimp.com/bcec73d19574f43e0b9ab00c1/images/DSCN2065.JPG" alt="" width="375" height="210" align="none" /><br />
Joe being interviewed by TV reporter</p>
<p><img style="width: 375px; height: auto; border: none; font-size: 14px; font-weight: bold; line-height: 100%; outline: none; text-decoration: none; text-transform: capitalize; display: inline; margin-bottom: 10px;" src="http://gallery.mailchimp.com/bcec73d19574f43e0b9ab00c1/images/DSCN2060.JPG" alt="" width="375" height="195" align="none" /><br />
Shirley Perez, Carlissa Puckett, Tony &amp; Joe speaking to the press.</p>
<p>It was a good event. The group home where we held the event had two individuals who had move out of Murray and Howe. Here is one of the stories that ran today.</p>
<div id="videowintext" style="color: #505050; font-family: Arial; font-size: 14px; line-height: 150%; text-align: left;">
<p><span style="font-size: 18px;"><span style="color: #0000cd;"><strong>SPARC Open House Reflects State Budget Cuts</strong></span></span></p>
<p>Finding a new home can be difficult for just about anyone. But if you&#8217;re challenged with a physical or mental disability, it&#8217;s even tougher. On Monday a Springfield organization held an event with the goal of helping those who want to help themselves. SPARC held a &#8220;community residence&#8221; open house geared specifically toward those who may soon have to relocate from state institutions, like the Jacksonville Developmental Center, which is slated to close later this year due to state budget cuts.</p>
<p>&#8220;SPARC&#8221; stands for The Springfield chapter of &#8220;ARC&#8221;, the oldest and largest organization helping people with intellectual  and developmental disabilities live more independent lives, worldwide.</p>
<p>&#8220;We believe that everybody can live in the community as long as the proper supports are in place&#8221; said Tony Paulauski, the Executive Director of  The Arc of Illinois. &#8220;And we think that the &#8216;rebalancing institution&#8217; that is planned has all of the key components that are going to make for a successful and safe transition into community living.&#8221;</p>
<p>When Paulauski refers to &#8220;rebalancing institution&#8221; he is referring to Governor Quinn&#8217;s plan to cut billions from the State budget by closing down State-run institutions, like the JDC, and transitioning those residents into a more independent group home. Most of the residents who do that are far more involved in the decision making process, and are therefor far more involved in their day to day care, says SPARC.</p>
<p>Monday&#8217;s Open House also offered one-on-one meetings with SPARC nurses and &#8220;self advocates&#8221; who could give future residents and their families a better idea of daily the daily health support and training necessary for residents to be more independent.<span style="display: none;">SPARC Open House Reflects State Budget Cuts</span></p>
<p class="date"><em>Posted: Monday, May 7 2012, 09:53 PM CDT<span style="display: none;"> </span></em></p>
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<p><img style="border: none; font-size: 14px; font-weight: bold; height: auto; line-height: 100%; outline: none; text-decoration: none; text-transform: capitalize; display: inline; margin-bottom: 10px;" src="http://gallery.mailchimp.com/bcec73d19574f43e0b9ab00c1/images/TonySignature.jpg" alt="" width="200" height="65" border="0" /><br />
Tony Paulauski<br />
<span style="color: #ff8c00;"><span>Executive Director<br />
The Arc of Illinois<br />
20901 S. LaGrange Rd. Suite 209<br />
Frankfort, IL 60423<br />
815-464-1832 (OFFICE)<br />
708-828-0188 (CELL)<br />
Tony@thearcofil.org</span></span></p>
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		<title>Arc Capitol Insider</title>
		<link>http://www.thearcofil.org/arc-capitol-insider-31</link>
		<comments>http://www.thearcofil.org/arc-capitol-insider-31#comments</comments>
		<pubDate>Wed, 09 May 2012 15:00:53 +0000</pubDate>
		<dc:creator>Tony Paulauski</dc:creator>
				<category><![CDATA[Capitol Insider]]></category>
		<category><![CDATA[Arc Capitol Insider]]></category>

		<guid isPermaLink="false">http://www.thearcofil.org/?p=1912</guid>
		<description><![CDATA[&#160;     for the Week of May 7, 2012           Action Alert   Action Alert: Preserve Vital Programs to Help Social Security Beneficiaries Work     Major Events Ahead   Budget – House to vote on plan that includes severe cuts to disability-related programs   House Republicans will take their first...]]></description>
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<td><img id="_x0000_i1025" style="line-height: 100%; text-transform: capitalize; outline-style: none; outline-color: invert; outline-width: medium; display: inline; margin-bottom: 10px; font-size: 14px; font-weight: bold; text-decoration: none;" src="http://ffs.capwiz.com/thearc/images/capitol_insider_building.jpg" alt="Capitol Insider" width="635" height="139" /></td>
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<td><em>for the Week of May 7, 2012</em></td>
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<td><a style="color: #336699; font-weight: normal; text-decoration: underline;" href="http://capwiz.com/thearc/utr/1/AJHLRRJYLS/EZWIRRKBDL/8249810231"><img id="_x0000_i1026" style="border: none; font-size: 14px; font-weight: bold; height: auto; line-height: 100%; outline: none; text-decoration: none; text-transform: capitalize; display: inline; margin-bottom: 10px;" src="https://secureimages.capwiz.com/SSLProxy/view.image?host=www.thearc.org&amp;port=80&amp;path_query=%2Fview.image%3Fid%3D2581" alt="Sign Up for the Capitol Insider" width="128" height="29" border="0" /></a>    <a style="color: #336699; font-weight: normal; text-decoration: underline;" href="http://capwiz.com/thearc/utr/1/AJHLRRJYLS/NQOKRRKBDM/8249810231"><img id="_x0000_i1027" style="border: none; font-size: 14px; font-weight: bold; height: auto; line-height: 100%; outline: none; text-decoration: none; text-transform: capitalize; display: inline; margin-bottom: 10px;" src="https://secureimages.capwiz.com/SSLProxy/view.image?host=www.thearc.org&amp;port=80&amp;path_query=%2Fview.image%3Fid%3D2580" alt="View The Arc's Public Policy Section" width="136" height="29" border="0" /></a>   <a style="color: #336699; font-weight: normal; text-decoration: underline;" href="http://capwiz.com/thearc/utr/1/AJHLRRJYLS/KVZVRRKBDN/8249810231"><img id="_x0000_i1028" style="border: none; font-size: 14px; font-weight: bold; height: auto; line-height: 100%; outline: none; text-decoration: none; text-transform: capitalize; display: inline; margin-bottom: 10px;" src="https://secureimages.capwiz.com/SSLProxy/view.image?host=www.thearc.org&amp;port=80&amp;path_query=%2Fview.image%3Fid%3D2579" alt="View Current Disability-Related Bills" width="140" height="28" border="0" /></a></p>
<div style="clear: both; color: #505050; font-family: Arial; font-size: 14px; line-height: 150%; text-align: left;"> <br />
<strong>Action Alert</strong><br />
 <br />
<a style="color: #336699; font-weight: normal; text-decoration: underline;" href="http://capwiz.com/thearc/utr/1/AJHLRRJYLS/JTSGRRKBDO/8249810231">Action Alert: Preserve Vital Programs to Help Social Security Beneficiaries Work</a><br />
 <br />
 <br />
<strong>Major Events Ahead</strong><br />
 <br />
<strong>Budget – House to vote on plan that includes severe cuts to disability-related programs</strong><br />
 <br />
House Republicans will take their first concrete steps today to avoid automatic spending cuts (known as a “sequester”) and begin a debate on ways to reduce spending on mandatory programs such as Medicaid and food stamps. The House Budget Committee will begin marking up two related bills, one of which would stop most of the $109 billion in across-the-board spending cuts that are scheduled to take effect in January under the Budget Control Act. The second is a “budget reconciliation” measure that would cut $300 billion over 10 years to substitute for the spending cuts. These combined measures include a number of provisions that would affect people with disabilities:<br />
 </div>
<ul>
<li>Repeal of the “maintenance of effort” requirements on states for Medicaid and the Children’s Health Insurance Program. The legislation would allow states to apply more restrictive eligibility standards for programs. The draft bill also would reduce the federal Medicaid match rate for U.S. territories from 55 percent to 50 percent, as well as cut the health care provider tax from the current 6 percent threshold to no greater than 5.5 percent.</li>
<li>Repeal of the <a style="color: #336699; font-weight: normal; text-decoration: underline;" href="http://capwiz.com/thearc/utr/1/AJHLRRJYLS/CBKNRRKBDP/8249810231">Social Services Block Grant (SSBG)</a>. The $1.7 billion SSBG enables each state to provide social services that include special services to persons with disabilities. One of the SSBG’s five goals is preventing or reducing inappropriate institutional care by providing for home and community-based services.</li>
<li>Increase repayment charges for people who receive <a style="color: #336699; font-weight: normal; text-decoration: underline;" href="http://capwiz.com/thearc/utr/1/AJHLRRJYLS/MAKKRRKBDQ/8249810231">health insurance subsidies</a>.  People with low incomes who received the subsidies would be affected if their incomes increase later in the year because they found a job, received a promotion, got married, or other reason.</li>
<li>Elimination of the <a style="color: #336699; font-weight: normal; text-decoration: underline;" href="http://capwiz.com/thearc/utr/1/AJHLRRJYLS/DMAXRRKBDR/8249810231">Prevention and Public Health Fund</a>. The Affordable Care Act (ACA) established this fund to expand investments in prevention and public health, to improve health outcomes, and to enhance health care quality.</li>
<li>Revisions to the medical liability system by capping non-economic damages to $250,000, limiting attorneys’ fees, and other changes.</li>
</ul>
<p> <br />
Democrats intend to offer an alternative plan for replacing the spending cuts that they say will be more balanced. According to press reports, Budget Committee Democrats may propose eliminating tax breaks that benefit some companies in an effort to increase tax revenue instead of finding additional spending cuts.<br />
 <br />
The House floor vote is currently scheduled for May 10<sup>th</sup>. However, the reconciliation process is not likely to proceed beyond the House of Representatives. A budget resolution, with reconciliation instructions, is unlikely to pass the Senate. However, the existence of a concrete plan to replace the automatic cuts could give House leaders leverage in discussions that will likely occur later this year about how to stop the automatic cuts.<br />
 <br />
 <br />
<strong>Announcements  </strong><br />
 <br />
<strong>Centers for Medicare &amp; Medicaid Services issues a correction – Comment period extended</strong><br />
 <br />
On May 1, 2012 The Centers for Medicare &amp; Medicaid Services (CMS) issued a correction to a proposed rule announced on April 26. The proposed rule, which would give states more flexibility to offer home and community-based services and support to Medicaid enrollees, originally set a 30-day public comment period ending June 4. The proposed rule as corrected allows for a 60-day public comment period ending July 2.<br />
 <br />
Both the rule and the correction were officially published in the Federal Register on May 3:</p>
<ul>
<li><a style="color: #336699; font-weight: normal; text-decoration: underline;" href="http://capwiz.com/thearc/utr/1/AJHLRRJYLS/BGLERRKBDS/8249810231">Proposed rule</a></li>
<li><a style="color: #336699; font-weight: normal; text-decoration: underline;" href="http://capwiz.com/thearc/utr/1/AJHLRRJYLS/EYLWRRKBDT/8249810231">Correction</a></li>
</ul>
<p> <br />
<strong>Housing – Report on Fair Housing Trends Documents Discrimination against People with Disabilities</strong><br />
 <br />
The National Fair Housing Alliance (NFHA) has released its annual report on fair housing trends. As noted in their press release, “In 2011, the largest share of housing discrimination cases, about 44 percent, involved discrimination against people with disabilities.” Under the federal Fair Housing Act, it is illegal to discriminate on the basis of race, color, religion, national origin, gender, disability, or familial status in rental housing, real estate sales, lending, insurance, and any financial or other services related to housing. To read NFHA’s 2012 Trends Report, go to <a style="color: #336699; font-weight: normal; text-decoration: underline;" href="http://capwiz.com/thearc/utr/1/AJHLRRJYLS/GFKHRRKBDU/8249810231">www.nationalfairhousing.org</a>.<br />
 <br />
<strong>Social Security – Social Security Statement Now Available Online</strong><br />
 <br />
A new online version of the Social Security Statement is now available. The online Statement provides eligible workers with access to their Social Security earnings and benefit information. It provides estimates people can use to plan for retirement, and also provides estimates for disability and survivors benefits. The Social Security Administration (SSA) encourages everyone to check the Statement once a year. To get a personalized Statement, people age 18 and older must be able to provide, through a secure system, information about themselves that matches information already on file with Social Security. SSA anticipates some members of the public will not be able to be verified through this process. In instances where this occurs, people will have the option to request a paper Social Security Statement be mailed to them. To learn more, visit <a style="color: #336699; font-weight: normal; text-decoration: underline;" href="http://capwiz.com/thearc/utr/1/AJHLRRJYLS/DOEHRRKBDV/8249810231">www.socialsecurity.gov/mystatement</a>.<br />
 <br />
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<p><img style="border: none; font-size: 14px; font-weight: bold; height: auto; line-height: 100%; outline: none; text-decoration: none; text-transform: capitalize; display: inline; margin-bottom: 10px;" src="http://gallery.mailchimp.com/bcec73d19574f43e0b9ab00c1/images/TonySignature.jpg" alt="" width="200" height="65" border="0" /><br />
Tony Paulauski<br />
<span style="color: #ff8c00;"><span>Executive Director<br />
The Arc of Illinois<br />
20901 S. LaGrange Rd. Suite 209<br />
Frankfort, IL 60423<br />
815-464-1832 (OFFICE)<br />
708-828-0188 (CELL)<br />
Tony@thearcofil.org</span></span></p>
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		<title>Verdict Baffles Advocates</title>
		<link>http://www.thearcofil.org/arc-and-verdict-baffles-advocates</link>
		<comments>http://www.thearcofil.org/arc-and-verdict-baffles-advocates#comments</comments>
		<pubDate>Tue, 08 May 2012 13:29:50 +0000</pubDate>
		<dc:creator>Tony Paulauski</dc:creator>
				<category><![CDATA[Issues of the Day]]></category>
		<category><![CDATA[Verdict Baffles Advocates]]></category>

		<guid isPermaLink="false">http://www.thearcofil.org/?p=1906</guid>
		<description><![CDATA[&#160; &#160; &#160; A real miscarriage of justice! Verdict baffles advocates of mentally disabled Jury chooses involuntary manslaughter in beating death at group home   By DAVID MERCER of the Associated Press  &#160; CHAMPAIGN — The violent death of Paul McCann led to improvements in how Illinois intends to protect the mentally disabled in group...]]></description>
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<div style="color: #505050; font-family: Arial; font-size: 14px; line-height: 150%; text-align: left;">A real miscarriage of justice!</p>
<h1 class="featured_headline entry-title" style="color: #202020; display: block; font-family: Arial; font-size: 34px; font-weight: bold; line-height: 100%; margin-bottom: 10px; text-align: left;">Verdict baffles advocates of mentally disabled</h1>
<h2 class="tease_headline" style="color: #202020; display: block; font-family: Arial; font-size: 30px; font-weight: bold; line-height: 100%; margin-bottom: 10px; text-align: left;">Jury chooses involuntary manslaughter in beating death at group home</h2>
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<div class="author vcard" style="color: #505050; font-family: Arial; font-size: 14px; line-height: 150%; text-align: left;"><span class="fn"><strong>By DAVID MERCER</strong></span></div>
<div class="source-org vcard" style="color: #505050; font-family: Arial; font-size: 14px; line-height: 150%; text-align: left;"><a class="url org fn" style="color: #336699; font-weight: normal; text-decoration: underline;" href="http://www.pjstar.com/">of the Associated Press</a><span style="display: none;"> </span></div>
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<p>&nbsp;</p>
<div class="float_l m5r dateline" style="color: #505050; font-family: Arial; font-size: 14px; line-height: 150%; text-align: left;">CHAMPAIGN —</div>
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<p>The violent death of Paul McCann led to improvements in how Illinois intends to protect the mentally disabled in group homes, but the trial of the first man accused of killing him suggests to some that justice and equality are still a challenge.</p>
<p>Jurors trying the case of caretaker Keyun Newble, 26, charged with killing McCann at an eastern Illinois group home, heard about the brutal injuries the 42-year-old suffered. He had 13 broken ribs and lungs filled with fluid, part of what a doctor called &#8220;massive internal injuries&#8221; suffered as apparent punishment for stealing cookies.</p>
<p>Newble was charged with murder, which would have sent him to prison for at least 20 years. But the judge allowed the option of a lesser charge, involuntary manslaughter, and the jurors took it, making him eligible for a sentence as short as three years.</p>
<p>For advocates of the disabled, the April 27 verdict was insulting. McCann&#8217;s family reacted with confusion. Both are trying to make sense of the verdict&#8217;s message just as officials are trying to better safeguard the lives of disabled people who need care from the state.</p>
<p>A second employee of the group home, 23-year-old Marquis Harmon, faces his own murder trial in the McCann case. Harmon testified against Newble and his attorney hopes prosecutors offer him a deal that reduces the charges.</p>
<p>That the first defendant was found guilty of anything less than murder is an outrage, said Tony Paulauski, executive director of The Arc of Illinois, an advocacy group for the disabled.</p>
<p>&#8220;I think it once again shows how our society devalues people with disabilities,&#8221; he said. &#8220;The aggressive actions of that employee that resulted in 13 broken ribs? That&#8217;s far beyond (manslaughter).&#8221;</p>
<p>McCann&#8217;s sister, Kathy Slovick, sat through the trial and doesn&#8217;t believe jurors in any way discounted her brother. But she believes prosecutors presented more than enough evidence to support the murder charge.</p>
<p>&#8220;Their decision was confusing to me and to members of my family,&#8221; said the 54-year-old from the Chicago suburb of Glen Ellyn.</p>
<p>Jurors did not speak to the media after rendering their verdict in Charleston.</p>
<p>Gov. Pat Quinn has made it a priority to close institutions for disabled people like McCann and transfer them into situations closer to their families, such as in group homes. But the effort has drawn criticism from unions and some affected families.</p>
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<div class="entry-content-print" style="color: #505050; font-family: Arial; font-size: 14px; line-height: 150%; text-align: left;">
<p>The violent death of Paul McCann led to improvements in how Illinois intends to protect the mentally disabled in group homes, but the trial of the first man accused of killing him suggests to some that justice and equality are still a challenge.</p>
<p>Jurors trying the case of caretaker Keyun Newble, 26, charged with killing McCann at an eastern Illinois group home, heard about the brutal injuries the 42-year-old suffered. He had 13 broken ribs and lungs filled with fluid, part of what a doctor called &#8220;massive internal injuries&#8221; suffered as apparent punishment for stealing cookies.</p>
<p>Newble was charged with murder, which would have sent him to prison for at least 20 years. But the judge allowed the option of a lesser charge, involuntary manslaughter, and the jurors took it, making him eligible for a sentence as short as three years.</p>
<p>For advocates of the disabled, the April 27 verdict was insulting. McCann&#8217;s family reacted with confusion. Both are trying to make sense of the verdict&#8217;s message just as officials are trying to better safeguard the lives of disabled people who need care from the state.</p>
<p>A second employee of the group home, 23-year-old Marquis Harmon, faces his own murder trial in the McCann case. Harmon testified against Newble and his attorney hopes prosecutors offer him a deal that reduces the charges.</p>
<p>That the first defendant was found guilty of anything less than murder is an outrage, said Tony Paulauski, executive director of The Arc of Illinois, an advocacy group for the disabled.</p>
<p>&#8220;I think it once again shows how our society devalues people with disabilities,&#8221; he said. &#8220;The aggressive actions of that employee that resulted in 13 broken ribs? That&#8217;s far beyond (manslaughter).&#8221;</p>
<p>McCann&#8217;s sister, Kathy Slovick, sat through the trial and doesn&#8217;t believe jurors in any way discounted her brother. But she believes prosecutors presented more than enough evidence to support the murder charge.</p>
<p>&#8220;Their decision was confusing to me and to members of my family,&#8221; said the 54-year-old from the Chicago suburb of Glen Ellyn.</p>
<p>Jurors did not speak to the media after rendering their verdict in Charleston.</p>
<p>Gov. Pat Quinn has made it a priority to close institutions for disabled people like McCann and transfer them into situations closer to their families, such as in group homes. But the effort has drawn criticism from unions and some affected families.</p>
<p>State legislation in the wake of McCann&#8217;s death, called Paul&#8217;s Law, led to changes that could broadly affect the thousands of people who live in group homes and similar settings in Illinois. That population currently is 9,500 people, according to the state Department of Human Services.</p>
<p>The new law requires background checks of group home employees and a hard look by state regulators at any facility where an abuse claim has been filed. The law also requires a state repository of group home records readily accessible to residents&#8217; families.</p>
<p>The network of homes where McCann lived, run by the private Graywood Foundation, lost its license and shut down.</p>
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<p><img style="border: none; font-size: 14px; font-weight: bold; height: auto; line-height: 100%; outline: none; text-decoration: none; text-transform: capitalize; display: inline; margin-bottom: 10px;" src="http://gallery.mailchimp.com/bcec73d19574f43e0b9ab00c1/images/TonySignature.jpg" alt="" width="200" height="65" border="0" /><br />
Tony Paulauski<br />
<span style="color: #ff8c00;"><span>Executive Director<br />
The Arc of Illinois<br />
20901 S. LaGrange Rd. Suite 209<br />
Frankfort, IL 60423<br />
815-464-1832 (OFFICE)<br />
708-828-0188 (CELL)<br />
Tony@thearcofil.org</span></span></p>
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		<title>Jon Will&#8217;s Gift</title>
		<link>http://www.thearcofil.org/arc-and-jon-wills-gift</link>
		<comments>http://www.thearcofil.org/arc-and-jon-wills-gift#comments</comments>
		<pubDate>Mon, 07 May 2012 13:52:07 +0000</pubDate>
		<dc:creator>Tony Paulauski</dc:creator>
				<category><![CDATA[Issues of the Day]]></category>
		<category><![CDATA[Jon Will's Gift]]></category>

		<guid isPermaLink="false">http://www.thearcofil.org/?p=1902</guid>
		<description><![CDATA[&#160; &#160; Happy Birthday Jon! We are glad you are here and living a full life in the community!&#160; Tony www.chicagotribune.com/news/opinion/ct-perspec-0504-will-20120504-7,0,4151670.story chicagotribune.com Jon Will&#8217;s gift By George F. Will May 4, 2012 WASHINGTON — When Jonathan Frederick Will was born 40 years ago — on May 4, 1972, his father&#8217;s 31st birthday — the life...]]></description>
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<div style="color: #505050; font-family: Arial; font-size: 14px; line-height: 150%; text-align: left;">Happy Birthday Jon! We are glad you are here and living a full life in the community!&nbsp;</p>
<p><span style="font-size: 14px;"><span style="color: #ff0000;"><strong>Tony</strong></span></span></p>
<p>www.chicagotribune.com/news/opinion/ct-perspec-0504-will-20120504-7,0,4151670.story</p>
<h1 style="color: #202020; display: block; font-family: Arial; font-size: 34px; font-weight: bold; line-height: 100%; margin-bottom: 10px; text-align: left;">chicagotribune.com</h1>
<h2 style="color: #202020; display: block; font-family: Arial; font-size: 30px; font-weight: bold; line-height: 100%; margin-bottom: 10px; text-align: left;">Jon Will&#8217;s gift</h2>
<p>By George F. Will</p>
<p>May 4, 2012</p>
<p>WASHINGTON —</p>
<div style="color: #505050; font-family: Arial; font-size: 14px; line-height: 150%; text-align: left;">
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<p>When Jonathan Frederick Will was born 40 years ago — on May 4, 1972, his father&#8217;s 31st birthday — the life expectancy for people with Down syndrome was about 20 years. That is understandable.</p>
<p>The day after Jon was born, a doctor told Jon&#8217;s parents that the first question for them was whether they intended to take Jon home from the hospital. Nonplussed, they said they thought that is what parents do with newborns. Not doing so was, however, still considered an acceptable choice for parents who might prefer to institutionalize or put up for adoption children thought to have necessarily bleak futures. Whether warehoused or just allowed to languish from lack of stimulation and attention, people with Down syndrome, not given the early and continuing interventions, were generally thought to be incapable of living well, and hence usually did not live as long as they could have.</p>
<p>Down syndrome is a congenital condition resulting from a chromosomal defect — an extra 21st chromosome. It causes varying degrees of mental retardation and some physical abnormalities, including small stature, a single crease across the center of the palms, flatness of the back of the head, a configuration of the tongue that impedes articulation, and a slight upward slant of the eyes. In 1972, people with Down syndrome were still commonly called Mongoloids.</p>
<p>Now they are called American citizens, about 400,000 of them, and their life expectancy is now 60. Much has improved. There has, however, been moral regression as well.</p>
<p>Jon was born just 19 years after James Watson and Francis Crick published their discoveries concerning the structure of DNA, discoveries that would enhance understanding of the structure of Jon, whose every cell is imprinted with Down syndrome. Jon was born just as prenatal genetic testing, which can detect Down syndrome, was becoming common. And Jon was born eight months before Roe v. Wade inaugurated this era of the casual destruction of pre-born babies.</p>
<p>This era has coincided, not just coincidentally, with the full garish flowering of the baby boomers&#8217; vast sense of entitlement, which encompasses an entitlement to exemption from nature&#8217;s mishaps, and to a perfect baby. So today science enables what the ethos ratifies, the choice of killing children with Down syndrome before birth. That is what happens to 90 percent of those whose parents have prenatal testing.</p>
<p>Which is unfortunate, and not just for them. Judging by Jon, the world would be improved by more people with Down syndrome, who are quite nice, as humans go. It is said we are all born brave, trusting and greedy, and remain greedy. People with Down syndrome must remain brave in order to navigate society&#8217;s complexities. They have no choice but to be trusting because, with limited understanding, and limited abilities to communicate misunderstanding, they, like Blanche DuBois in &#8220;A Streetcar Named Desire,&#8221; always depend on the kindness of strangers. Judging by Jon&#8217;s experience, they almost always receive it.</p>
<p>Two things that have enhanced Jon&#8217;s life are the Washington subway system, which opened in 1976, and the Washington Nationals baseball team, which arrived in 2005. He navigates the subway expertly, riding it to the Nationals ballpark, where he enters the clubhouse a few hours before game time and does a chore or two. The players, who have climbed to the pinnacle of a steep athletic pyramid, know that although hard work got them there, they have extraordinary aptitudes because they are winners of life&#8217;s lottery. Major leaguers, all of whom understand what it is to be gifted, have been uniformly and extraordinarily welcoming to Jon, who is not gifted.</p>
<p>Except he is, in a way. He has the gift of serenity, in this sense:</p>
<p>The oldest of four siblings, he has seen two brothers and a sister surpass him in size, and acquire cars and college educations. He, however, with an underdeveloped entitlement mentality, has been equable about life&#8217;s sometimes careless allocation of equity. Perhaps this is partly because, given the nature of Down syndrome, neither he nor his parents have any tormenting sense of what might have been. Down syndrome did not alter the trajectory of his life; Jon was Jon from conception on.</p>
<p>This year Jon will spend his birthday where every year he spends 81 spring, summer and autumn days and evenings, at Nationals Park, in his seat behind the home team&#8217;s dugout. The Phillies will be in town, and Jon will be wishing them ruination, just another man, beer in hand, among equals in the republic of baseball.</p>
<p><em>Washington Post Writers Group</em></p>
<p><em>George Will is a syndicated columnist based in Washington.</em></p>
<p><em><a style="color: #336699; font-weight: normal; text-decoration: underline;" href="mailto:georgewill@washpost.com">georgewill@washpost.com</a></em></p>
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Tony Paulauski<br />
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