The Arc of Illinois

July 21, 2010

Leaders in The Arc:

Today, The Arc of the United States launched a disability needs survey: FINDS.

We encourage you to take the survey and share this information with other advocates.

Tony Paulauski

The Arc of Illinois

815-464-1832

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The Arc Launches National Disability Needs Survey
FINDS Family and Individual Needs for Disability Supports

Washington, DC - (July 21, 2010)  As we pause to celebrate the 20th anniversary of the Americans with Disabilities Act (ADA), The Arc recognizes that there has been significant progress made on behalf of people with disabilities.  There is more still to be done, however, and The Arc is initiating a national effort to tap into the knowledge and perspectives of individuals and families within the intellectual and developmental disabilities (I/DD) community.
Our goal is to assist the sector in determining needs for services and supports.  This surveyThe Arc FINDS (Family and Individual Needs for Disability Supports) will enable those in the field to better understand what services are available, what gaps exist and what new supports are needed.
The Arc FINDS launches July 21 and will be accessible until September 1 to all families and individuals with I/DD, both in and outside of The Arcs chapter network.  Dissemination of the survey to a broad range of disability and caregiving networks across the country and throughout our allied organizations will maximize the surveys reach and findings.
The Arc FINDS will capture the perceptions of individuals with intellectual and developmental disabilities of all ages, as well as those of their families and caregivers.  The results will provide us with a much-needed candid and current view on issues concerning the needs for disability supports across the life span, said Peter V. Berns, CEO of The Arc.
We are committed to finding a meaningful way to involve the population we serve in determining the services provided and gauging the successful delivery of these servicesjust as any business would involve its consumer network through an open market-research style survey.  Were thrilled to be promoting FINDS in collaboration with other top disability organizations focused on those with intellectual and development disabilities, Berns said.
Ann Cameron Caldwell, Chief Research and Innovations Officer for The Arc, is directing the survey and its evaluation.  The information gleaned from the survey will help identifyand documentnationally, by state and locally what families want in terms of needed services and supports. This information, including personal stories, will be valuable in informing and supporting ongoing program development, advocacy and policy work, said Dr. Caldwell, who is the parent of a teenager with Down syndrome.
Questions are being asked in areas of advocacy, education, transition, employment, housing, community participation, civic engagement/voting, transportation, caregiving, and demographics.  It is written to allow for both the perspective of individuals with I/DD, as well as their parents/caregivers.  It also assumes for the differences in service and supports required at different stages of life.
Options are in place for respondents to contribute personal stories about their experiences with contact information to support advocacy efforts here in Washington.
The vehicle for collection will be an online survey that respondents can link to electronically through The Arcs website:  www.thearc.org.  There is no cost to participate and all responses will be confidential; it will take respondents about 30 minutes to complete the survey.  The survey may also be found at:   http://www.surveymonkey.com/s/TheArcFinds2010
This information will be shared initially at The Arcs National Convention (November 3 - 6, 2010 in Orlando, Florida), as well as publicly on The Arcs website. 
If you have any questions, please contact Laura Hart, Director, Media Relations, at 202.534.3712 or at hart@thearc.org

About The Arc
The Arc promotes and protects the human rights of people with intellectual and related developmental disabilities, from any of hundreds of specific syndromes and neurological conditions throughout their lifetimes.  Together with our network of 730 state and local chapters, as well as our individual members, we support their full inclusion and participation in their communities and influence public policy.  For more information, please visit www.thearc.org