I was very pleased to see this story in the Southern Illinoisan. We usually do not get much
news coverage here.



Advocates say Illinois must stop ‘warehousing’ disabled


By Mark Fitton Illinois News Network

SPRINGFIELD — A coalition of advocates for the developmentally disabled is calling for
the eventual closure of six of seven of the state’s residential centers.

The Going Home coalition is not proposing legislation this session and it’s not saying which
of the existing centers should remain open.

Illinois’ seven centers for the developmentally disabled are Choate Mental Health &
Developmental Center in Anna, and centers in Centralia, Dwight, Dixon, Kankakee, Park
Forest and Waukegan.

Since 2001, the state has closed centers in Lincoln, Tinley Park and Jacksonville.

The seven remaining Illinois centers employ a total of roughly 3,600 people, most of them
represented by the American Federation of State, County and Municipal Employees, which
has opposed facility closures in the past. An AFSCME Council 31 spokesman declined to
comment for this story.

The coalition’s proposal is not without opponents and, in fact, reveals a divide in the
community of developmentally disabled people and their families.

Going Home says community-based care can provide a better quality of living for the
1,730 people now in state-operated centers.

And, it says, community caregivers can do the job not only better, but cheaper.

The coalition says Illinois is spending about $429 million annually to serve state center
residents. It says community-based caregivers can do that job equally well or better for
about $92 million per year.

“Illinois is facing a major budget crisis. This is a unique opportunity to save the state
significant money,” said Cheryl Jansen, legislative director of Equip for Equality, one of the
coalition members.

Further, the coalition says, Illinois is following an antiquated care or service model that
warehouses individuals.

It cites Illinois’s status as the state with the third-most people in residential care, behind
only New York and Texas.

At the same time, the coalition says, Illinois ranks 47th in the country when it comes to
providing funding for community living for the developmentally disabled.

“They may have said they want to close six, but they want to close all of them,” said Rita
Burke, president of Illinois League of Advocates for the Developmentally Disabled, or

Burke, the parent of an adult resident of Choate Mental Health Center in Anna, said her
organization doesn’t agree that every resident of the state’s centers can survive, let
alone thrive, outside the centers.

Her group includes many officers of the parents associations of the seven remaining
state centers, and those parents groups do not support mass or sudden closures.

She argues the cost savings cited by Going Home is vastly oversimplified and does not
adequately address care for individuals with extraordinary medical needs.

And considering Illinois is ranked 47th in the state in terms of support for community-
based care, what makes anyone think it will suddenly be ready to transfer 1,700 people
to community care, she asked.

Tony Paulauski, executive director of The Arc of Illinois, said Illinois is still warehousing
the developmentally disabled and must transition to community-based care.

Fourteen states currently have no state centers and 35 states have 500 or fewer people
living in state-operated centers, he said.

State Rep. Charles Meier, R-Okawville, is a passionate defender of the Murray Center in
Centralia, which the Quinn administration tried to close.

For now, at least, the Murray Center remains open.

But he says some of the initial transfers out were badly handled and, in fact, put people
in settings that met their needs far less successfully than the state center did.

“People have the right to decide where they want to live, “ he said, and many state
residents— and their parents or guardians — believe they have do have good lives and
wish to remain in the state centers.

He says rushing to close centers is a poor idea, and the state will “certainly need more
than one,” given both the state’s physical size and its population.

Meier and many parents point to the U.S. Supreme Court’s decision in Olmstead vs. L.C.,
saying they say the residents of the state centers have a right to choose to remain where
they are.

In that case, two residents of a Georgia state facility sued to prevent being inappropriately
treated and housed in the institutional setting.

The court ruled that individuals are entitled to treatment in the most integrated setting
possible as determined on case-by-case basis, and it said that in some cases that might
include institutions. The court held transfers must meet three criteria:

• The new setting is appropriate according to state treatment professionals.

• The new setting is not opposed by the resident and is less restrictive than the state

• The transfer can be reasonably accommodated given the resources of the state.

The court also said there is no federal requirement that community-based treatment be

Illinois News Network reporter Greg Bishop contributed to this story.

The Illinois News Network is a reporting service that shines a light on public policies that
affect the residents of Illinois. It is a project of the Illinois Policy Institute.

Tony Paulauski
Executive Director
The Arc of Illinois
20901 S. LaGrange Rd. Suite 209
Frankfort, IL 60423
815-464-1832 (OFFICE)
815-464-1832 (CELL)