One of our great friends in The Arc is Dorelia Rivera.
Dorelia has had a strong relationship with the National Institutes of Health
because of her daughter Kayla. Kayla happens to be one of about 100
children in the world with NOMID, or neonatal-onset multisystem
inflammatory disease, is a rare disease that is often fatal. This video tells
the story of Kayla Martínez, who was diagnosed with NOMID as a baby. It
also tells the story of a treatment for NOMID that was discovered by Dr.
Raphaela Goldbach-Mansky at the National Institute of Arthritis and
Musculoskeletal and Skin Diseases at the National Institutes of Health.
Enjoy this excellent success story about Kayla and her family.
Tony Paulauski Executive Director
The Arc of Illinois
20901 S. LaGrange Rd. Suite 209
Frankfort, IL 60423
815-464-1832 (OFFICE)
815-464-1832 (CELL)
Tony@www.thearcofil.org
