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A newsletter for chapters that connects, engages and informs. JUNE 25, 2012
  Letter from the CEO
Peter V. Berns, CEO of The Arc
Peter V. Berns
CEO of The Arc
Summer Leadership Institute an Opportunity for All
Peter Berns is on vacation this week. In place of his regular column, please take a moment to find out more about what we have planned for the NCE Summer Leadership Institutein Indianapolis July 26-29. This valuable program is not just for members of the National Conference of Executives of The Arc. It’s designed to benefit anyone who wants to learn and grow in the movement for intellectual and developmental disabilities. This year’s focus is on innovations and challenges in areas such as employment, engineering systems change, community organizing and more with such notable speakers as George Seuss, of The Arc of Delaware County (NY), who will lead a pre-conference on recruiting the best of the best for your organization. And, we’ll hear from leaders like Lillia Teninty of the Human Services Research Institute, McKenzie Scott Lewis of The MSL Group and Nancy Thaler of the National Association of State Directors of Developmental Disabilities Services on topics such as managed care and trends in self-directed services and employment. Get more detailed program information and register at www.ncearc.org. Early registration and special room rates end July 2 and the famous Brickyard 400 is running that weekend so rooms will fill up quickly!
  Resources & Opportunities
Judy Huemann Advocate Judy Heumann to Speak at The Arc’s National Convention
Judy Heumann, a lifelong advocate for people with disabilities who contributed to the development of human rights legislation and policies while extending the reach of the independent living movement will be the keynote speaker at The Arc’s National Convention and International ForumOctober 25-28 in Washington, D.C. She will headline a program that includes plenary sessions on living and being included in communities across the globe, creating change through advocacy and policy and tackling issues of choice, support and inclusion. Plus, The Arc will hold their annual business meetings, host a fun film festival and partner with Inclusion International to present informative and enlightening sessions and events at The Grand Hyatt in the heart of Washington, D.C. Get more detailed information and register nowfor the best rates and accommodations.
Teddy's Ts The Arc Introduces The Market
At this year’s National Convention and International Forum, The Arc will introduce The Market, an opportunity for entrepreneurs with I/DD to promote their businesses or sell products to the hundreds of attendees convening in Washington D.C. this October without incurring the expense of traveling to the event to exhibit. The Arc will work with participants in The Market to sell products or distribute materials for them in exchange for a small portion of the proceeds. Are you a self-advocate entrepreneur? Or do you know a self-advocate with a great microbusiness to promote? Contact Wendy Katz at 202-534-3720 or katz@thearc.orgfor all the details.
Bank of America Employment and Education Grant Available
The Bank of America Charitable Foundation seeks grant proposals from nonprofits addressing local workforce development and education needs. A total of $15 million will be awarded to U.S.-based nonprofit 501(c)(3)organizations for local workforce development and education initiatives leading to economic self-sufficiency through employment. The deadline for applications is July 2.
Morgan's Wonderland Morgan’s Wonderland Seeks Walk of Fame Nominations
Morgan’s Wonderland, an accessible and inclusive family theme park in San Antonio, TX, is seeking nominations of special-needs “heroes” for Walk of Fame recognition. The Walk of Fame honors inspirational individuals who embody determination, caring, achievement, sacrifice and inclusion. Honorees will be recognized at the Soar Gala on September 22 and their name will be added to the Walk and Roll path encircling the park’s eight-acre lake. Nominations can be submitted to WalkofFame@MorgansWonderland.com. Complete nominating instructions are available at MorgansWonderland.com.
Pregnant belly Free FASD Resource Available
The New Jersey Coalition for the Prevention of Developmental Disabilities has launched a new campaignto prevent FASD. The CDC has reported that 1 in 8 pregnant women report drinking alcohol which can cause an array of developmental difficulties in children called Fetal Alcohol Spectrum Disorders. In an effort to increase the awareness of FASD they have produced posters in English and Spanish and information cards in English, Spanish, and several other languages to reach women who may not be aware of the consequences of consuming alcohol during pregnancy. You can order copies of the materials through their campaign website.
  News & Action Items
Sprout Sprout Films to Distribute The Eighth Day
Sprout Films, a partner of The Arc in The Arc & Sprout National Film Festival will distribute the award-winning film, The Eighth Day (Le Huitieme Jour) on sproutflix. This 1996 feature-length Belgian film tells the tells the funny and poignant story of a friendship that develops between a divorced businessman and a young man with Down syndrome who ran off from an institution. This film was nominated for the Palme d’Or award, the top prize at the Cannes Film Festival. It won the Best Actor award that year, which was given to both lead actors. Be sure to check out the Sprout Touring Film Festivaland make plans to attend The Arc & Sprout National Film Festival at The Arc’s National Convention and International Forumthis October.
American Psychiatric Association The Arc comments on Draft Autism Diagnostic Criteria
The Arc submitted comments to the American Psychiatric Association regarding the Diagnostic and Statistical Manual (DSM-5) draft diagnostic criteria for “Intellectual Developmental Disorder” and “Autism Spectrum Disorder.” DSM definitions are critical to people with intellectual and developmental disabilities (I/DD) as numerous federal and state programs and private health insurance plans use the DSM to determine eligibility for services and supports. Changes to the diagnostic criteria could have devastating effects on individuals who need services, supports, and basic protections to remain in their communities. Read The Arc’s letter here.
Emily Travis SAFA Member Competes for Miss Illinois
Emily Travis, a member of Self-Advocates with FASD in Action (SAFA) will compete in the Miss Illinois Pageant this week. She plans to speak about how having FASD has affected her life and stressing the importance of prevention as her platform in the competition. The SAFA Network is a project of The Arc designed to build and support a strong network of self-advocates with FASD who can provide leadership in promoting and organizing self-advocacy efforts that benefit them.
Capitol Dome Bipartisan Legislation Introduced to Remove R Word from SSI
Senate Bill 3289was introduced by Senator John Kerry (D-MA) and Senator Chuck Grassley (R-IA) that, among other things, would remove “mentally retarded” terminology from the Social Security Act. The term would be changed to “intellectually disabled.” The bill builds on the 2010 Rosa’s Lawwhich updated the language in numerous health and education bills.
  Online Education Opportunities
Autism NOW logo New Autism NOW Webinar: Learning How to Give & Understand Consent
It may be challenging for individuals with autism and other developmental disabilities to recognize non-verbal cues; therefore, giving consent and understanding boundaries in romantic relationships may be difficult. Tomorrow, June 26 at 2:00 p.m. ET, Leah Grantham will discuss strategies and ideas to help individuals with autism learn about and articulate the need for personal space, bodily autonomy, and consent as it relates to sex and relationships. This webinar from Autism NOW National Resource and Information Center will help people with autism learn how to be safe and secure in romantic relationships as well as how to recognize and respect the personal boundaries and consent of others. Register today!
Standards for Excellence What’s the Secret to Achieving Board Excellence?
There’s still time to register for an E-Learning Series Webinar on Achieving Board Excellence Thursday, June 28 at 2:00 p.m. ET. Explore the latest and greatest best practices in the area of Board Governance including tips on recruiting Board members and keeping them active and engaged. Learn about Board relations, especially the key relationship with the executive director/CEO in this session designed to give you the tools you need to work with your current board and build the board you really want. There will be plenty of time for comments and questions in this interactive session. Register now.
The Arc's e-Learning Series FREE Capacity Building Webinar Scheduled
Join The Arc July 12 at 2:00 p.m. ET for an informational E-Learning Series Webinar on Capacity Building for your Chapter. Kate Hull, The Arc’s Chapter Specialist, will discuss Capacity Building and the steps that you can take to help your chapter grow. Also covered will be the tools and resources that the Standards for Excellence program provides and how to access them, and use them in your day to day operations of your chapter to build a stronger organization. This session is FREE but pre-registration is required.
  Chapter Focus
 The Arc of Southwest Washington State Chapters Share Success Stories Online
In this and upcoming issues of Fusion, The Arc will feature news from Chapters participating in The Arc and Walmart Foundation-funded School-to-Community Transition Initiative. Forty-nine Chapters across the country have been awarded grants specifically to help individuals with I/DD overcome issues related to transitioning from school to work, higher education or living in the community as an adult. Read about The Arc of Loudoun’s (VA) expanded school program which now includes a variety of vocational and community experiences to better prepare young adults for independent living. The newest phase in the STEP Up program will be a campus store, run by students. And, find out how The Arc of Southwest Washington supports transition students by developing self-advocacy/self-determination skills, building a support team directed by the student and improving the transition “flow” through an Empowerment Action Club for students. Get more inspirational stories from other Chapters working on transition issues on our website.
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Brand Resources

Chapter Resources

The Arc Audi Racing Team
Brand Update
The exciting and highly visible The Arc & Audi Racing Programcontinues to introduce the new brand to thousands of race fans across the country with the Mid-Ohio Sports Car Course race and the Sonoma Grand Prix. This national exposure will serve to connect our national brand with the important work done locally by our chapters in the minds of a large group of people who may not have previously been aware of The Arc. Owner/driver Don Istook and representatives from chapters in Ohio and California will draw attention to The Arc and issues of employment for people with I/DD at the events.
Which Chapters have signed up to use The Arc’s new brand? Find out on our website.
The Arc welcomes The Arc of Middle Georgia and The Arc of Stephens County (GA) to our chapter network.
Congratulations to David James in his new role as Executive Director of The Arc of Volusia in Florida.
Assistance Available for College Students with Down Syndrome
The O’Neill Tabani Enrichment Fund of the National Down Syndrome Society offers financial assistance to adults with Down syndrome enrolling in postsecondary programs or taking enrichment classes to help them to gain employment, independent living skills or life skills. Find out who qualifies and how to apply.
Upcoming Events
NCE Summer Leadership Institute
July 26-29
Indianapolis, IN

National Convention and International Forum – Achieving Inclusion Across the Globe
October 25-28, 2012
Washington, D.C.

The Arc’s National Convention 2013
August 2-5, 2013
Seattle, Washington
Where’s Peter?

  • July 25: NCE Board Meeting, Indianapolis, IN
  • July 26–29: NCE Summer Leadership Institute, Indianapolis, IN
  • July 29: The Arc Board of Directors Meeting, Indianapolis, IN
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Tony Paulauski
Executive Director
The Arc of Illinois
20901 S. LaGrange Rd. Suite 209
Frankfort, IL 60423
815-464-1832 (OFFICE)
815-464-1832 (CELL)