We had an excellent meeting with Director Casey yesterday regarding the submission of a new Home & Community Based Adult Waiver. The “waiver” is what dictates the services/supports that will be available to adults with intellectual and other developmental disabilities as long as they meet the eligibility requirements. Director Casey wanted to discuss with us the priorities of new services/supports that should be included in the new waiver application to the Center for Medicare & Medicaid Services  (CMS). CMS must approve any additions or changes to the Adult Waiver. I was pleased with the general agreement on important priority areas including more self-direction, employment outcomes, flexible residential options, increased rates and quality management. But what really pleased me was that Director Casey stated he wanted to significantly increase the role of self advocates and families in the development of services and policies. This was quite evident in the make up of the participants in the room yesterday with many new faces representing self advocates and family members. Keep up your good work, Director Casey. The disability system is their lifeline for a real life in the community.It looks like 800 adults will soon receive notification that they are moving off the waiting list thanks to the Ligas settlement!

There will be another meeting of the Commission on Government Forecasting & Accountability (COGFA) on the closing of the Jacksonville Developmental Center. The hearing will be held on Wednesday, March 7th, 2012 at 5:00 p.m. on the campus of Illinois College at the Bruner Recreation Center in Jacksonville.

David Braddock, Ph.D., will be a featured speaker at the Annual Arc/TAP Convention, April 25 – 26, 2012. The convention will be held at the Lisle Hilton. Professor Braddock’s topic will be “The State of the States in Developmental Disabilities and the United States: 2012.” Make your plans now to attend this important convention and welcome Dr. Braddock back to Illinois.

Here is an article from The Arc of the United States.



3 State Chapters Making a Difference – Let’s hear it for Alabama, Illinois and Virginia!

Being part of the community and living as independently as possible are among the most important values and goals shared by people with disabilities, their families, and advocates.  Chapters of The Arc across the country are on the front lines of pushing for inclusion and advocating for these important rights in their communities.  And we want to share the progress that is being made in Alabama, Illinois and Virginia.


The Arc of Alabama’s tireless work led to a huge victory for its state at the end of 2011. Working with other statewide I/DD organizations, the W.D. Partlow Developmental Center in Tuscaloosa, the home of thousands of individuals with I/DD over the years, officially closed on December 28. With the closure of Partlow, Alabama becomes the first state in the southeast and one of only 13 states in the country to no longer operate large public institutions.

“We are delighted about the closure of Partlow. We share the credit for this great accomplishment with People First of Alabama and others, but I can say it would not have happened without The Arc,” said Tom Holmes, Executive Director of The Arc of Alabama.

December’s closing meant the last 150 residents of Partlow were moved to community homes throughout the state.  Partlow, which opened in 1923, was costing approximately $42 million a year to operate.

“Most of the families come back and say that they did not realize that their family members would be so much happier living in the community. That is just wonderful for us to hear,” said Tom Holmes.

To learn more about the closure of Partlow read about it in The Tuscaloosa News.


Governor Pat Quinn’s announcement of his plan to rebalance the state’s approach to providing long term services and supports for individuals with I/DD means change for thousands of individuals in Illinois. The Governor’s Active Community Care Transition (ACCT) plan will increase the number of individuals with I/DD living in community settings across the state.

“This historic change in public policy embraces freedom, independence and choice. Our current system is antiquated. Only two states warehouse more people in institutions than Illinois and 13 states have closed all public institutions. More than 30 national studies show that community living provides the most safe and effective care. Yet Illinois ranks last in the nation in the number of available community settings,” said Tony Paulauski, Executive Director of The Arc of Illinois.

The Arc of Illinois has been an integral partner in moving the state toward a community based system. Over the last few months the Governor’s office has been in constant contact with The Arc of Illinois’ Executive Director Tony Paulauski and other members of The Arc.

During the first phase of the plan, residents from the Jacksonville Developmental Center (JDC) in Jacksonville, IL and from the Tinley Park Mental Health Center (MHC) in Tinley Park, IL will be transitioned to community settings and the facilities will be closed. Read more about the first of these closures.

Also, check out The Arc of Illinois website for updates on the transition.


Last month, the Department of Justice reached a settlement agreement with Virginia requiring the state to provide community-based services through Medicaid waivers and family supports for more than 5,000 individuals with I/DD. The agreement means that Virginia will no longer be heavily reliant on large, expensive, public institutions. The state will be able to focus on individualized and cost effective community based services that allow individuals to live independent lives and participate in the community.

“The Arc of Virginia applauds Governor McDonnell and his administration for taking this important step in the right direction.  We salute DOJ’s leadership on making this a successful effort that will result in thousands of people with intellectual and developmental disabilities being afforded the opportunity to live “A Life Like Yours” in the community.   This landmark agreement will be long remembered as a historic moment in the ID/DD civil rights movement,” said Jamie Liban, Executive Director of The Arc of Virginia.

The state must create 4,170 new waiver slots for people currently residing in the state’s five Training Centers (about 1,000 individuals), people with intellectual disabilities who are on the state’s “urgent” waiting list for waiver services, people with ID who are under 22 and live in facilities other than the training centers, people with DD who are on the state’s waiting list for waiver services and for people with DD who are under 22 and live in facilities other than the training centers. The state also will create an individual and family support program for 1,000 individuals with I/DD most at risk of institutional placement.

Detailed plans for helping individuals transition from institutional settings to community settings and establishing a quality and risk management system are outlined in the agreement. An independent reviewer will oversee the settlement agreement for the court which retains jurisdiction.

View The Arc’s full statement in response to this agreement. 

Tony Paulauski
Executive Director
The Arc of Illinois
20901 S. LaGrange Rd. Suite 209
Frankfort, IL 60423
815-464-1832 (OFFICE)
815-464-1832 (CELL)