After each monthly webinar, a copy of the presentation as well as any additional resources will be posted here. Please note that the information presented was accurate and up to date at the time it was presented. We have archived past webinars for informational purposes but cannot guarantee accuracy of webinar information after the presentation date.
Please take a moment to complete the very brief follow up survey under each webinar if you participated in a webinar or listened to the recorded webinar. Thank you!
March 10, 2020 – Fundamentals of Respite, Presented by Tina Yurik, Director, Illinois Respite Coalition
The Illinois Respite Coalition (IRC) provides statewide information and referral to individuals across the lifespan. The IRC also has a DHS-funded in-home respite grant that serves 16 counties. When funded, the IRC also has a statewide emergency respite program. The IRC is built upon statewide partnerships.
This webinar covered the following related to Respite Care:
- What is respite care?
- Why use respite care services?
- What are the different kinds of respite?
- How to choose/ select the respite that is right for you
- Overcoming concerns
- Preparing the care recipient for respite
- Evaluating your respite care
- Things to consider
- Quick Tips
About the Presenter: Before becoming the Director of the IRC, Tina volunteered with for ten years, six of which she served as board president. Previously, Tina worked as the Director of Clearbrook’s Take a Break programs for 18 years. Through her position, she supported children with special needs from birth to five years of age in Cook, Lake, DuPage and McHenry counties by working with trained volunteers, an idea which this program was the first to utilize in the Midwest. She has taught trainings on special education issues related to IDEA and ADA both regionally and nationally through the Family Resource Center on Disabilities, as the Assistant Director. Prior to working in the nonprofit industry, she worked 15 years in Advertising, Retail & Catalog industry as a Human Resources Manager. In addition, Tina is an active committee member for the Special Recreation Services of Northern Lake County, Head Start Health Advisory Committee member, and for over eight years she has been an Illinois educational surrogate parent through ISBE. She regularly attends the National Respite Coalition Conferences each year.
Click here for webinar recording: Fundamentals of Respite Recording
Click here for presentation slides: The Fundamentals of Respite Care Final -yurik
Click the title below for handouts from the webinar:
IRC Respite Guide Handout
Click here for webinar follow up survey: Follow up survey – March 2020
February 11th, 2020 -The PATH to Real Person-Centered Solutions, presented by Kish Pisani, IAMC
This webinar provided information on the PATH (Planning Alternative Tomorrows with Hope) process for individuals with IDD and why person-centered planning is at the heart of a self-directed quality of life. PATH is a visual, supportive process that provides individuals with disabilities and their circle of support, a rich, future-based plan based on the individuals’ gifts and talents, preferences, and needs. This session not only helps you understand the steps of the process but how it has impacted lives and organizations. If you’re already familiar with PATH and MAPS, this session will include updates and new tools.
This webinar includes:
- *Start with Circles of Support
- *What is a PATH and the different steps of the process
- *How a PATH is used for authentic person-centered, self-directed solutions including Microboards, Cooperatives, Customized Employment, Creative Housing, Supported Decision Making, Sibling Support, and the importance for long-term and estate planning.
- *What is the IAMC and what we do
- *How you can become a PATH facilitator
About the Presenter: Kish Pisani is Executive Director of the Illinois Association of Microboards and Cooperatives (IAMC), a position she’s held since April 2019. Kish brings over 30 years of marketing, public relations, grant writing, advocacy, and non-profit management experience to this position. Kish is also a graduate of the Partners in Policymaking program. Her most important job remains a mom to her 22-year old son who lives with IDD and says Live Streaming what other families are going through in Illinois makes this job all the more authentic. Kish and her family have established a micro-enterprise, Logs by Lou, for their son to achieve long-term financial independence, created an organization for athletes with disabilities in suburban Chicago, and are active with Special Olympics Illinois. They are passionate about Unified Sports and authentic community inclusion opportunities for individuals with IDD — and just as important — their families and support circles.
Click here for webinar recording: Real Person Centered Planning Webinar
Click here for webinar presentation slides: Arc PATH to Real Person Centered Solutions
Click HERE for webinar follow up survey: Survey
Click documents linked below for handouts:
PATH Training-Schaumburg Township info 2-6
January 14th, 2020 – Parent Training and Information Centers – Helping Families of Children and Youth with Disabilities, presented by Nancy Mader, Family Matters Parent Training & Information Center
The webinar covered:
1-Why do Parent Centers exist?
2-What types of services are offered?
3-What do services look like in Illinois?
4-How do parents access services?
Nancy Mader was the presenter for this webinar. Nancy is the Project Coordinator for Family Matters Parent Training and Information Center. She has been with Family Matters for 30 years and her educational background is in Business Management. She works on finances and coordinates the activities of the staff, including the Information Specialists who work directly with parents whose children receive, or are in need of, special education instruction and supports. She works with organizations to collaborate on providing workshops for parents in their communities and in setting up online parent training opportunities.
Please click here for webinar recording: PTICs, Helping Families of Children and Youth with Disabilities
Please click here for webinar presentation: PTICs – Helping Families
Please click here for webinar follow-up survey: FMPTIC Webinar Follow-up Survey
Family Matters Brochure 2018
Parent Centers in Action
Programs of The Arc of IL Flyer 9.6.19
December 10th, 2019 – Speak Up and Speak Out in Springfield – Disability Advocacy and the FY2020 Illinois Legislative Session
Presented by Phil Milsk, The Arc of Illinois Government Relations Consultant, and Meg Cooch, Executive Director, The Arc of Illinois
- FY2020 Legislative Process
- Key Issues for FY2020 Legislative Session (budget, possible bills/issues)
- The Arc Legislative Priorities – Engaging people on their priorities
- What you can do to make your voice heard?
- Coalition involvement – Going Home Coalition, They Deserve More
Phil Milsk is an attorney in private practice who serves as a governmental relations consultant to several Illinois organizations, including the Arc of Illinois. He specializes in disability services, education, human services and health care access. Phil is a graduate of DePaul Law School and the University of Illinois at Chicago.
For more than 20 years, Meg Cooch, Executive Director of The Arc of Illinois, has worked on disability, aging and health policy, utilizing advocacy and organizing tools to expand community living at the local, state and national levels. With knowledge of health policy and systems in Illinois including Medicaid, Meg has worked for almost six years leading state public policy efforts and programmatic initiatives. Prior to moving to Chicago, Meg worked at the federal level on Medicaid and disability policy and advocacy in Washington, DC. Meg also has local experience working directly with people with disabilities, seniors, families and service providers at Planning for Elders, a grassroots San Francisco-based advocacy organization, where she served in many capacities including as Executive Director.
November 19th, 2019 – IL DHS DDD Update and Q and A, Presented by Allison Stark, Ronnie Cohn, Donna Frownfelter, Shirley Perez
The following describes the content shared by each of the webinar presenters.
Allison Stark, Director, Division of Developmental Disabilities, Illinois Department of Human Services. Update on ISC transition
- DHS DDD plans/changes in 2019-2020
- DD Hub Pilot Project
- Access to information through:
Ronnie Cohn, Ligas Court Monitor (Due to technical difficulties, we were unable to provide connection to the webinar for Ronnie Cohn and we apologize for any inconvenience this may have caused. You can reach Ronnie Cohn with any questions at email@example.com.)
- State of Ligas Case
- “Reasonable Pace” for PUNS selection
- Compliance Monitoring
- Implementation Plan
- Seeking input from families regarding concerns and barriers
Donna Frownfelter, PT, MA, DPT, CCS, FCCP, FAPTA, Chair, Ligas Advisory Committee & Parent
- Development and purpose of Ligas Advisory Committee
- Current summary of feedback from families that has been shared with LAC
- Plans/goals for Townhall Meetings/Presentation
- How to connect with LAC to share experiences and barriers or to participate
Shirley Perez, Director, Ligas Family Advocate Program & Parent
- Role of Ligas Family Advocate Program
- Services offered by LFA program
- Know Your Options events
- One-to-one support and consultation regarding HCBW services and navigation
- Informational webinars and call-in series
- Providing parent-to-parent connection
- How to connect with regional LFA’s
Click here for webinar recording: IL DHS DDD Update Webinar
Click here for webinar presentation: ILS DHS DDD Update Webinar Presentation
Click here for webinar follow-up survey: Nov 19 2019 Follow Up Survey
Meg Cooch – 2019-11-10 Testimony – Subminimum Wage (002)
Please contact Megan@thearcofil.org with any questions regarding the webinar.
November 5th, 2019 – Special Needs Trusts and ABLE Accounts, Presented by Benjamin Rubin, J.D., L.L.M., Rubin Law
Among the topics covered:
- Difference between first party and third party special needs trusts
- How able accounts work with first party and third party special needs trusts.
- Common mistakes in special needs trusts
This webinar features Benjamin Rubin, J.D., L.L.M. Attorney Benjamin (Benji) Rubin is the youngest son of Brian Rubin, Rubin Law, and is also Mitchell’s “little/big” brother, and has been a member of the Rubin Law Firm since 2010. Benji graduated from the University of Illinois College of Law, Magna Cum Laude, received his undergraduate degree from Northwestern University, and his Graduate Law Degree, an LLM (Tax), from Northwestern University. Benji is a member of the Academy of Special Needs Planners, a member, by invitation, of the Special Needs Alliance (the national not for profit association of special needs planning attorneys with membership by invitation only), is Chairman of the American Bar Association Special Needs Planning Committee, serves as the President of SIBS (Supporting Illinois Brothers and Sisters), the Illinois chapter of the national Sibling Leadership Network, an organization of adult siblings of individuals with intellectual disabilities, developmental disabilities and/or mental illness. Benji is a member of the Board of Directors of The Arc of Illinois.
Click here for the webinar recording: November 5th Webinar Recording
Click here for the webinar presentation: Rubin Webinar Presentation
Click here to complete follow-up survey: Special Needs Trusts and ABLE Webinar Survey
October 8th, 2019 – Building Bridges with the Criminal Justice Professionals and the Disability Community, Presented by Amy Newell, Executive Director, The Arc of Winnebago, Boone, & Ogle Counties
This webinar covers the importance of building relationships, training and cross disability communication. The presenter described what a disability response team is and how to create one. Amy also provided information on partnering with The Arc of the United States to provide pathways to justice training as well as other trainings that have been done because of the Disabilities Response Team and why they are impactful.
Presented by Amy Newell. Amy has been the Executive Director of The Arc of Winnebago, Boone, and Ogle Counties for six years. She has a diverse background ranging from banking to local government with a BA in Education and English from Luther College in Decorah, Iowa. Amy has two teenagers, Alana and Jackson, who are the joys of her life. Amy’s husband, Jason, is a sergeant with the Winnebago County Sherriff’s department. Soon after joining the organization she identified the need for additional services for families and individuals with a diagnosis involved with the criminal justice system. Criminal justice professionals, families and individuals who have a diagnosis now look at the agency with questions and concerns.
Click here for webinar recording: Oct 8, 2019 Webinar Recording
Click here for webinar presentation slides: Oct 8 2019 Webinar Arc WBO on Criminal Justice and Community
Click here for webinar follow up survey: Survey
Click here for Programs of The Arc of IL document: Programs of The of IL
September 10th, 2019 – Aging and Individuals with Intellectual and Developmental Disabilities, presented by Lieke van Heumen, a Visiting Clinical Assistant Professor in the Department of Disability and Human Development at the University of Illinois at Chicago (UIC). This presentation includes a brief introduction to aging of individuals with intellectual and developmental disabilities, and provides an overview of challenges experienced by this population to age well and supports that can be provided.
Introduction to aging with I/DD
Challenges and supports
- Social Relations
- Death and Dying
Click here for webinar recording: Aging and Individuals with Intellectual and Developmental Disabilities
Click here for webinar presentation slides: Aging and I DD Webinar Slides 9.10.19 final
Click here for webinar follow up survey: Aging Webinar Survey
July 9th, 2019 – The ABC’s of Self-Directing Services, presented by Eileen Morrissey, Director of Family Support Services, from Envision Unlimited, Tasha Whiteside, Director of Illinois Operations, ACES$, and Shirley Perez, Director, Ligas Family Advocate Program and Family Support Network
This webinar provided an overview of the HBS program and key components and examples of how HBS resources can be used. An introduction to the Illinois Fiscal Agent, ACES$, and the services they provide, as well as Self-Directed Assistance (SDA) and the role and responsibilities of a Self-Directed Assistant were discussed.
Participants in this webinar learned about:
- The key components of the Home and Community-Based Medicaid Waiver
- The differences between Home-Based and CILA Services
- The responsibilities of those directing Home-Based Services
- The roles and responsibilities of Developmental Disability Service Providers, Independent Service Coordination Agencies, Self-Direction Assistants, Employers of Record, and the role of the Illinois Fiscal Agent, ACES$
- How to explore strategies to maximize the available benefits of the Home-Based Services Program
- How to identify resources and programs that can provide guidance and assistance
Click here for webinar recording: ABC’s of Self-Directed Services Webinar
Click here for webinar presentation slides: The ABC’s of Self Directed Services 7 8 2019 COMPLETE
Click here to complete webinar follow up survey: ABC’s of Self Directed Services Webinar Follow-Up Survey
Click here for Electronic Visit Verification Info: EVV Info
June 11th, 2019 – How the Human Rights Authority Assists in Maintaining Rights, presented by Gene Seaman, Human Rights Authority
Presented by Gene Seaman. Gene is the managing administrator for the southern regions of the Human Rights Authority, a division of the Illinois Guardianship and Advocacy Commission. In addition to managing, Gene works on community outreach and marketing for the division. The Human Rights Authority serves as the investigatory body of the agency and serves people with disabilities throughout the state of Illinois. Prior to managing, Gene worked as the Human Rights Authority Coordinator for the Peoria region for over 8 years.
Participants can expect to learn –
• Examples of rights that HRA would investigate
• Short description of the Illinois Guardianship and Advocacy Commission and the Human Rights Authorities role in the agency
• How the HRA investigates complaints
• Actual HRA investigations and results
• Contact information for Human Rights Authority
Please click here for webinar recording: How the HRA Assists in Maintaining Rights
Click here for webinar presentation: How the HRA Assists in Maintaining Rights
Please click here to complete follow up survey: HRA Webinar Survey
Please click here for information on Programs of The Arc of IL: Programs of The Arc of IL
May 14th, 2019 – The Role of the Independent Service Coordination Agency (ISC) and Its Many Functions: PUNS and Transition to Community Based Waiver Services, presented by Juan Aponte from Community Alternatives Unlimited.
This webinar covered:
• History of CAU, service area and population
• How to find your ISC agency
• The role of an ISC
• Eligibility criteria for DHS-DD services and the Pre Admission Screening (PAS) process in the State of IL
• What is PUNS and What should a parent/guardian do while waiting for PUNS selection
• What types of services are available under PUNs or Crisis criteria
Presented by Juan Aponte, M.S., QIDP – Juan is a Director of Services with Community Alternatives Unlimited, an Independent Service Coordination (ISC) providing case management services to families of individuals with Intellectual/Developmental Disabilities in Lake County, Northwest Cook County and Northside of Chicago, IL. During his 29 year tenure at CAU, Juan has worked very closely and diligently with many service providers and families of individuals with intellectual and developmental disabilities.
Juan has also received extensive training in autism in the states of Indiana and Illinois. Juan continues to work closely with the Illinois Department of Human Services – Division of Developmental Disabilities (IDHS-DDD), Illinois Department of Rehabilitation Services (DRS) and several local school districts, residential and vocational providers in the Chicago/Metro area for the purpose of advocating and securing necessary supports and services for families and individuals with special needs. His areas of expertise include advocacy, crisis case management and transition planning for families and individuals with autism and behavioral challenges transitioning from special education into adult services. Other special projects of interest include CAU Presentations, PUNS Outreach, working with Hispanic families and Networking with school districts and adult service providers.
If you need to find your Independent Service Coordination Agency (ISC), you can use the following link to the DHS Office Locator. Choose “Developmental Disability Services” as the Office Type, your county, and zip code in Cook County. http://www.dhs.state.il.us/page.aspx?module=12 .
You may also give the Illinois Life Span Program a call at 1-800-588-7002 during regular business hours. Thank you!
April 9th, 2019 – Early Intervention & Speech-Language Pathology: A Training for Family and Collaborative Professionals
This webinar covers information regarding Early Intervention (EI) services, EI services specific to speech-language therapy, programs/services within The Arc, and advocacy tools. The webinar begins with defining EI and continues with an overview in how individuals and families can acquire services for children ages birth-3 years old. Additionally, a discussion of how speech language pathologists are involved in EI both in evaluations and interventions. The webinar concludes with information regarding The Arc and advocacy tools for families.
Presented by: Anna Hastings, B.S., Graduate Student & LEND Trainee, Speech-Language Pathology, Rush University and Mary Kate Connelly, B.S., Graduate Student & LEND Trainee, Speech-Language Pathology, Rush University
Click here for webinar recording: EI & Speech Language Pathology
Click here for webinar presentation: LEND Webinar Presentation Slides
Click here to complete follow up survey: EI LEND Webinar Follow Up Survey
LEND Webinar Resource Sheet
Programs of The of IL
March 12th, 2019 – Let’s Learn About ABLE Accounts!
JJ Hanley, presenter for this webinar, is Director of Illinois ABLE for the Illinois State Treasurer’s office, which leads 16–state, bi-partisan alliance that offers “A Better Life Experience” ABLE accounts to people with disabilities in Illinois and across the country. Her career evolved from financial securities trader to disability parent advocate and professional, focused on building enterprises that foster economic independence, community participation and employment of people with disabilities.
Participants can expect to learn:
• What ABLE stands for
• How to qualify for ABLE
• Types of funds that can be
• What are the ABLE account Options
• What ABLE Funds can be used for
• Tax Benefits with ABLE
• How to Enroll in ABLE
Click here for webinar recording: Let’s Learn About IL ABLE
Click here for webinar presentation: LEARN ABOUT IL ABLE_11-28-18
Click here to complete follow up survey: ABLE Follow Up Survey
ABLE Frequently Asked Questions
February 12th, 2019 – Partner, Help, Connect: How DSCC Supports Youth with Special Health Care Needs and Their Families
The University of Illinois at Chicago’s Division of Specialized Care for Children (DSCC) is a statewide program that serves children and youth with special healthcare needs and their families.
Presenters for this webinar included:
• Thomas Jerkovitz, Executive Director, has led DSCC since 2009. He has a distinguished career in healthcare administration within the state of Illinois and in the private healthcare industry.
• Molly Hofmann, APRN, MSN, PCNS-BC, Associate Director of Care Coordination oversees the administration for the development and implementation of all Care Coordination operations, policies, and procedures for the Core and Home Care Programs.
• Darcy Contri, RN, BSN, MPH, Title V Program Transition Specialist provides support for transition age youth and their families since 1998.
The University of Illinois at Chicago’s Division of Specialized Care for Children (DSCC) is a statewide program that serves children and youth with special healthcare needs and their families. DSCC staff help families find the specialty care and resources they need for their child to reach their full potential.
Click here for webinar recording: DSCC Webinar, February 2019
Click here for webinar presentation: DSCC Arc Webinar Presentation Feb. 2019
Click here to complete follow-up survey: DSCC Webinar Follow Up Survey
Click here for Programs of The Arc of IL handout: Programs of The of IL
January 8th, 2019 – Living in My New House! Presented by Samantha, Brian, and Missy Kichline
Samantha (Sam) Kichline is a young 28 year old woman who was selected from the PUNS waiting list in 2012. She moved from her parents’ home into her “new” home in 2015. And she loves her new home.
Samantha lives in Community Integrated Living Arrangement (CILA) Host Family – Shared Living model of support in the St. Louis Metro-East area.
Moving from the family home to a new home is a unique journey for each individual and family. In this webinar, Sam and her parents, Brian and Missy, will share their personal experiences; how they prepared, what worked, what was learned, how life is now and what is hoped for the future.
Click here for webinar recording: Living in My New House! – Sam, Missy, and Brian Kichline
Click here for webinar presentation: January 2019 Living in My New House! Lunchtime webinar
Click here to complete follow-up survey: Living in My New House Follow-Up Survey
Handout: Programs of The Arc of IL