The Ligas Family Advocate Program (LFAP) provides broad outreach to adults and families throughout Illinois who are selected from the PUNS or notified in advance of a future PUNS selection. We connect you to the information you need to make smart, informed decisions for home and community-based funding and services, helping adults with intellectual and developmental disabilities live their fullest lives.
The Ligas Family Advocate Program is funded through a grant from the Illinois Department of Human Services.
With a wealth of experience and understanding, we support you in navigating the adult developmental disabilities system, uncovering outside-the-box solutions and help you to avoid confusion at every step of the process.
No matter what stage you are in, our team will provide assistance plans for maximum success.
Prepare for the pre-admission screening process with your Independent Service Coordination (ISC) agency.
Meet other families and build a broader support network through informative workshops and events.
LFAs will support you in connecting to your Independent Service Coordination Agency, which is a key step in accessing adult disability services.
You must be an adult (18 and above) in Illinois, have an intellectual disability or other developmental disability, qualify for Medicaid Waiver services and:
Recently received an Early Notification letter or a PUNS selection letter? Join us to learn about your options under the Medicaid Home and Community-Based Waiver for Adults with Developmental Disabilities in Illinois. We will discuss service and support options, explore the role of your ISC, review the key steps you need to take to prepare for supports, and talk through common concerns and barriers. Registration is required. Click here for event flyer.
Monthly – 1st Thursday
12:00 – 1:00 p.m.
Zoom: Online Webinar
¿Recibió recientemente una carta de notificación temprana o una carta de selección de PUNS? Únase a nosotros para aprender sobre sus opciones bajo la Exención basada en el hogar y la comunidad de Medicaid para adultos con Discapacidades del desarrollo en Illinois. Discutiremos las opciones de servicio y soporte, exploraremos el rol de su ISC, revise los pasos clave que debe seguir para prepararse para los apoyos y analicepreocupaciones y barreras comunes.
Monthly – 1st Viernes
12:00 – 1:00 p.m.
Zoom: Online Webinar
Family advocates work to empower individuals and their families with the information they need to make informed choices. We understand the system can be confusing, which is why we provide the necessary tools and connections to ensure you and your family get the support you deserve.
DHS 2021 Consumer Handbook on Home-based Services
Selecting a Community Day Service Program
Statewide List of CILA Providers
CQL Living Options
Learn What a Ligas Family Can Do For You
Planning for DD Services
Selecting a Self Direction Assistant
Flowchart From PUNS Enrollment to DD Waiver Services
The Ligas Family Advocate program began as a pilot project in 2014 funded by the Illinois Department of Human Services in response to a need for consistent statewide information about waiver options for PUNS selectees after implementation of the Ligas Consent Decree in 2011. “Ligas” is the last name of the lead plaintiff, Stanley, a man living with Down syndrome, who sued the State to access a community-based, non-institutional living option. We offer information and support to those beginning the process to become eligible for the Medicaid waiver for adults with DD in Illinois so they may make informed choices.
We know how to help because we’ve been in your shoes. We are family members of individuals with developmental disabilities, and we understand the need for assistance in making informed choices about living and service options.
Together, we can direct you to the resources you need.
Ruth Aguilar has over fifteen years of combined experience advocating for people with disabilities. She holds a B.S Psychology from the Illinois Institute of Technology and Professional Graduate Studies in Non-Profit from Harvard University. Ruth’s professional experience stems from working previously in an ISC Agency and then as a Self-Directed Assistant serving the community with intellectual and developmental disabilities. Moreover, with her personal expertise as a mother of a teen girl with Rett Syndrome and Seizure Disorder, Ruth brings a wealth of knowledge to the families by assisting them in how to obtain services and understanding their options by being assertive, yet professional. Ruth is inspired by her husband and her daughter to be a servant leader who helps those around her without hesitation.
Megan is the Senior Ligas Family Advocate for the Central/Southern regions of Illinois. She joined the Arc of Illinois in September of 2018. Megan attended the University of Missouri-Columbia, where she completed both her BS and MA in Human Development and Family Studies. She spent many years as a member of the Pediatric Supportive Care Team at Children’s Hospital of Illinois, where she focused on patient and family centered care. Megan, who resides in Germantown Hills, IL, is the mom to two daughters, one of whom is a young adult with a developmental disability. Megan has a strong interest in developmental disability advocacy, transitioning from school to adult services systems, family centered communication, and community-based inclusion.
Shirley A. Perez is the Program Director of the Ligas Family Advocate Program. Ms. Perez has thirty-five plus years of advocating and working with individuals and their families with disabilities. She is a business graduate of Metropolitan Business College and Kaplan University. She operated her own business, worked at an ISC Agency where she advocated for and assisted families in locating services by navigating the State system. In conjunction with the City of Chicago, Federal Home Loan Bank and The Illinois Housing Development Authority, she implemented a home-buying program for individuals with developmental and physical disabilities. She has worked as a Special Project Advocate with the Illinois Life Span Project; met with families/guardians to explain the transition process and listen to their concerns as their family members’ transition into the community from State Operated Developmental Centers.
She currently serves on various Department of Human Services Committees and is an active volunteer in both her community and church. She is the proud mother of an adult daughter (Tamekia), who lives in the community. Tamekia is diagnosed with multiple disabilities, intellectually and developmentally delayed. She is non-verbal, diagnosed with Autism and suffers from a seizure disorder. Ms. Perez’s passion for advocacy is fueled by her desire to help her daughter and others with disabilities reach their full potential. Her philosophy is, “everyone can succeed with the right support!” She can be contacted at firstname.lastname@example.org.
See Additional Arc of Illinois Fact Sheets
“Thank you, LFA so very much for taking time to share a wealth of information with me. I am just so happy that this process looks so very positive.
I can’t tell you how refreshing it is to know that there are individuals such as yourself that are very tenacious and have seen this project come to fruition. I am excited and am so looking forward to this opportunity opening up for my son.”